背景：家庭會議在安寧緩和療護中可以幫助病人及家屬的照護和促進溝通，但在兒童安寧緩和療護則較少被運用，目前有關兒童安寧緩和療護家庭會議文獻有限。
目的：本研究旨在透過詢問「醫療人員啟動兒童安寧緩和療護家庭會議的目的」、「為了召開家庭會議所做的事前準備、會議過程中之經驗、會議之後的照護」、「家庭會議傳達的兒童安寧緩和療護之價值與反思」此三層面，探討醫療人員召開兒童安寧緩和療護家庭會議經驗現象的潛在結構。
方法：採立意取樣法，選取南部某醫學中心14位曾經召開或參與過兒童安寧緩和療護家庭會議的醫療人員。以半結構式訪談大綱進行深度訪談，並使用胡塞爾描述現象學方法、超驗現象學及Colaizzi資料分析法進行資料分析並形成研究結果。
結果：研究結果共呈現三個主題，醫療人員啟動兒童安寧緩和療護家庭會議之經驗本質為「盡責捍衛病童及其家庭最佳利益之守門人」；會議前、中、後則展現「帶領家屬渡過惡水的領航者」；在整個旅程中，維護安寧緩和照護之價值於「幽谷伴行以達彼此身心安頓的守光者」。
結論：透過本研究的結果，可增進醫療人員對於召開兒童安寧緩和療護家庭會議的背景知識，強調醫療人員召開兒童安寧緩和療護家庭會議本質結構是「盡責捍衛最佳利益；整合性照護計畫」、「專業詳盡解釋；雙向對話；情緒支持；照護支持」、「由信任、舒適照護，守護希望」的執行過程。醫療人員執行兒童安寧緩和療護家庭會議將可實踐兒童安寧緩和療護之核心價值。

The initiation of palliative family meeting can promote quality of palliative care and facilitate better communication between the health care team and the family. However, existing literatures regarding pediatric palliative family meeting are limited. The purpose of this study is to explore the essence of health care professionals’ experiences to initiate a pediatric palliative family meeting. Husserl’s descriptive phenomenological study was conducted through in-depth, semi-structured interviews with fourteen health care professionals. Data were analyzed using transcendental phenomenology Moustakas and Colaizzi’s seven-step protocol. Three main themes emerged: (1) professional accountability for patients’ and family’s best interests, (2) professional navigation through sailing across the dark ocean in the illness transitions journey, (3) competent self while walking through the valley of the shadow of death with the patient and family. The essence of the experiences of pediatric palliative family meeting is structured by “accountability for best interests, integrated palliative care planning, professional and thorough information explanation, two-way communication, emotional support, care support, maintaining hope through providing trust and comfort. These results suggest that the process of pediatric palliative family meeting will be conducive to the practice of pediatric palliative care. The results of this study may further direct educational training and practices in pediatric palliative care. From the results, we come to a better understanding, put on a holistic view of the intervention about the healthcare professional initiation pediatric palliative family meeting.

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