| 研究生: |
蔡盈盈 Tsai, Ying-Ying |
|---|---|
| 論文名稱: |
乳癌患者家屬照顧者的因應、社會支持與生活品質之相關性初探 The Relationships of Coping, Social Support and Quality of Life of Breast Cancer Patients’ Family Caregiver |
| 指導教授: |
陸汝斌
Lu, Ru-Band 曹朝榮 Tsao, Chao-Jung |
| 學位類別: |
碩士 Master |
| 系所名稱: |
醫學院 - 行為醫學研究所 Institute of Behavioral Medicine |
| 論文出版年: | 2006 |
| 畢業學年度: | 94 |
| 語文別: | 中文 |
| 論文頁數: | 77 |
| 中文關鍵詞: | 生活品質 、照顧者 、因應 、社會支持 |
| 外文關鍵詞: | quality of life, social support, caregivers, coping |
| 相關次數: | 點閱:113 下載:7 |
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乳癌診斷確立的剎那,影響的不只是婦女本身,更對家人及其配偶產生強烈的衝擊。近年來國外學者逐漸開始重視在此適應歷程中,家屬照顧者如何去因應以獲得較佳的生活品質,而目前國內之相關研究仍尚待發展。本研究旨在探討在疾病治療過程中且未經歷復發階段的乳癌患者,其家屬照顧者之因應、社會支持與生活品質之相關性。
本研究設計採取橫斷式研究,以結構性問卷於南部兩所醫學中心及一所區域教學醫院之外科門診與化療室收集資料,有效問卷共65份。研究工具包括:家屬因應行為量表、照顧者社會支持量表及台灣簡明版世界衛生組織生活品質問卷。
研究結果發現:(1)情緒取向因應與整體生活品質的生理健康、心理、社會關係及環境等四個範疇成顯著負相關;反之,問題取向因應與各範疇成顯著正相關。(2)家屬照顧者主觀認為所獲得的社會支持程度,特別是來自於家人親友的部分,與其生活品質的心理、社會、環境三個範疇成顯著正相關。(3)逐步迴歸分析發現,情緒取向因應、問題取向因應、家庭平均月收入及來自家人親友的社會支持等變項,對家屬照顧者生活品質各範疇皆具有顯著解釋量,可解釋其總變異量的38%~55%;整體而言,以情緒取向因應最為重要,而問題取向因應次之。
本研究結果顯示,乳癌此類慢性疾病之家屬照顧者的情緒取向因應越少,問題取向因應越多,且主觀感受到來自家人親友的社會支持較高時,其整體生活品質較佳。藉此可供臨床醫療相關人員,在給予患者及其家屬照顧者適當之衛教方針及健康照護上之參考,並有助於未來後續之研究探討。
Purpose: Coping with breast cancer is a major challenge for patients and their family caregivers. In spite of caregiver’s difficulties, little is known about how they cope with the effects of cancer, and their quality of life. The purpose of this study was to identify factors that affect the adjustment of family caregivers of breast cancer patient and to examine what coping strategies and sources of perceived social support are related to higher quality of life.
Methods: A cross-sectional study was designed to determine the relationship between predictor variables (coping strategies, perceived social support) and their quality of life. The sample consisted of 54 family caregivers of women who had been diagnosed with stage 0-3 of breast cancer within the period of 18-month. The multiple standardized instruments with established reliability and validity were used to measure the study variables. The independent variables were measured with the Family Coping Behaviors Scale, the Social Support Scale. The dependent variable, psychosocial adjustment, was measured with the WHOQOL-BREF.
Results: Bivariate correlational analyses showed that problem-focused coping strategies and social support from family/friends were both significant positively relative to quality of life, whereas emotion-focused coping strategies had detrimental effects. Study variables accounted for a considerable amount of variance in family caregivers’ quality of life (38%~55%). In these factors, emotion-focused coping and problem-focused coping accounted most variance in level of quality of life of family caregivers.
Conclusion: The findings suggest that coping strategies are very influential in family caregivers to deal with the effects of cancer, and the perceived adequacy of support from family members or friends is also important about their psychosocial adjustment. Programs need to include family members to help counteract the negative effects of the disease on their mental health, and enable them to continue as effective caregivers.
中文部分
范聖育(2002)。家庭功能與安寧療護主要照顧者生活品質的相關性探討。成功大學行為醫學研究所碩士論文。
林梅香、顧乃梅、劉仲冬、陳政友、林立嬋(1996)。肝癌患者家屬主要照顧者的壓力、因應行為、健康狀況相關因素之探討。護理研究,4,171-185。
林少瑜(2004)。呼吸器依賴主要照顧者壓力感受、因應行為與社會支持之相關性探討。陽明護理研究所碩士論文。
羅靜心(1990)。住院癌症病患家屬的因應及因應策略之探討。東海大學社會工作研究所碩士論文。
羅淑芬、黃秀梨、劉雪娥、姚開屏(2002)。燒傷病患主要照顧者生活品質及其相關因素之探討。台灣醫學,6(5),625-635。
邱啟潤、許淑敏(2000)。談關懷家庭照顧者。高雄護理雜誌,17(1),7-13。
邱啟潤、許淑敏、吳瓊滿(2002)。主要照顧者負荷、壓力與因應之國內研究文獻回顧。醫護科技學刊,4(4),273-290。
行政院衛生署(2004)。衛生統計-癌症發生率統計。臺北:行政院衛生署。
徐薇鈞(1997)。癌症病患主要照顧者生活品質與社會支持及其相關因素。高雄醫學院護理研究所碩士論文。
姚開屏(2001a)。台灣版世界衛生組織生活品質問卷之發展及使用手冊-第一修訂版。 台北市。
姚開屏(2001b)。台灣簡明版世界衛生組織生活品質問卷之發展及使用手冊-第一修訂版。台北市。
姚開屏(2002)。台灣版世界衛生組織生活品質問卷之發展與應用。台灣醫學,6(3),193-200。
英文部分
Berkman, L. (1984). Assessing the physical health effects of social networks and social support. Annual Review of Public Health, 5, 413-432.
Cohen, S., Wills, T.A. (1985). Stress, social support, and the buffering hypothesis. Psychology Bulletin, 98(2), 310-357.
Coyne, J. C., & Downey, G. (1991). Social factors and psychopathology: stress, social support, and coping processes. Annual Review of Psychology, 42, 401.
Compas, B., Worsham, N., Epping-Jordan, J., Grant, K., Mireault, G., Howell, D., et al. (1994). When Mom or Dad has cancer: markers of psychological distress in cancer patients, spouses and children. Health Psychology, 13, 507-515.
Cox, T. (1986). Stress. London : Macmillan Education.
Cancer Research Campaign, (C.R.C.)(1996). Breast cancer UK, London, Cancer Research Campaign.
Diane, R.Z., Cheryl, A.G., & Martha, J.F. (1994). Quality of life and coping in patients with gynecologic cancer and their spouses. Oncology Nursing Forum, 21(10), 1699-1706.
Davis, J.M., Hoshiko, B.R., Jones, S., & Gosnell, D. (1992). The effect of a support group on grieving individuals’ levels of perceived support and stress. Archives of Psychiatric Nursing, 6(1), 35-39.
Ell, K., Nishimoto, R., Mentall, J., & Hamovitch, M. (1988). Longitudinal analysis of psychological adaptation among family members of patient with cancer. Journal of Psychosomatic Research, 32, 429-438.
Given, B., & Given, C.W. (1992). Patient and family caregiver reaction to new or recurrent breast cancer. Journal of American Medicine Women’s Association, 47, 201-206.
Glasdam, S., Jensen, A.B., Madsen, E.L., & Rose, C. (1996). Anxiety and depression in cancer patients' spouses. Psycho-Oncology, 5, 23-29.
Hinds, C. (1985). The needs of families who care for cancer patients with cancer at home: are we meeting them? Journal of Advanced Nursing, 10, 575-581.
Holland, J. C. (2002). History of psycho-oncology: overcoming attitudinal and conceptual barriers. Psychosomatic Medicine, 64, 206-221.
Holland, K. D., & Holahan, C. K. (2003). The relation of social support and coping to Positive adaptation to breast cancer. Psychology and health, 18(1), 15-29.
Hoskins, C. (1995). Adjustment to breast cancer in couples. Psychological Reports, 77, 435-454.
Hoskins, C., Baker, S., Budin, W., Ekstrom, D., Maislin, G., Sherman, D., et al. (1996). Adjustment among husbands of women with breast cancer. Journal of psychosocial oncology, 14(1), 41-69.
Keitel, M.A., Zevon, M.A., Rounds, J.B., Petrelli, N.J., & Karakousis, C. (1990). Spouse adjustment to cancer surgery: distress and coping responses. Journal of Surgery Oncology, 43, 153-158.
Keller, M., Heinrich, G., Sellschop, A., & Beutel, M. (1996). Between distress and support: spouses of cancer patients. In Baider L, Cooper CL, Kaplan De-Nour AK, eds. Cancer and the family. Chichester: Wiley, 187-223.
Kershaw, T., Northouse, L., Kritpracha, C., Schafenacker, A., & Mood, D. (2004). Coping strategies and quality of life in women with advanced breast cancer and their family caregivers. Psychology and Health, 19(2), 139-155.
Kilpatrick, M.G., Kristjanson, L.J., Tataryn, D.J., & Fraser, V.H. (1998). Information needs of husbands of women with breast cancer. Oncology Nursing Forum, 25, 1595-1601.
Kuiper, R., & Nyamathi, A. M. (1991). Stressors and coping strategies of patients with automatic implantable cardioverter defibrillators. The Journal of cardiovascular Nursing, 5(3), 65-76.
Lazarus, R. S., & Folkman, S. (1984). Stress, appraisal, and coping. New York: Springer Co.
Le, T., Leis, A., Pahwa, P., Wright K., Ali, K., & Reeder, B. (2003). Quality of life issue in patients with ovarian cancer and their caregivers:a review. Obstetrical and Gynecological Survey, 58, 749-758.
Lepore, S.J., Helgson, V.S. (1998). Social constraints, intrusive thoughts, and mental health after prostate cancer. Journal of Social Clinical Psychology, 17, 89-106.
Lewis, F.M., Woods, N.F., Hough, E.E., & Bensley, L.S. (1989). The family’s functioning with chronic illness in the mother: the spouse’s perspective. Social Science & Medicine, 29, 1261-1269.
Lim W., & Zebrack B. (2004). Caring for family members with chronic physical illness: A critical review of caregiver literature. Health and Quality of Life Outcomes, 2, 50-58.
Lindholm, L., Rehnsfeldt, A., Arman, M., & Hamrin, E. (2002). Significant others’ experience of suffering when living with women with breast cancer. Scandinavian Journal of Caring Sciences, 16, 248-255.
Mahon, S. M. (1997). Comparison of methods for the early detection of breast cancer. Image Journal of Nursing Scholarship, 29(3), 292.
Manne, S.L. (1999). Intrusive thoughts and psychological distress among cancer patients: the role of spouse avoidance and criticism. Journal of Consulting and Clinical Psychology, 67, 539-546.
McCaul, K.D., Schroeder, D.M., & Reid, P. A. (1996). Breast cancer worry and screening. Some prospective data. Health psychology, 15, 430-433.
Mimura, C., Griffiths, P. (2004). A Japanese version of the perceived stress scale: translation and preliminary test. International Journal of Nursing Studies, 41, 379-385.
Moos, R.H., & Billings, A. (1982). Conceptualizing coping resources and processes. In L. Goldberger & S. Breznitz (eds.). Handbook of stress: Theoretical and clinical aspects. New York: Macmillan.
Morse, S.R., & Fife, B. (1998). Coping with a partner’s cancer: Adjustment at four stages of the illness trajectory. Oncology Nursing Forum, 25, 751-760.
Myaskovsky, L., Dew, M. A., Switzer, G. E., McNulty, M. L., DiMartini, A. F., & McCurry, K. R. (2005). Quality of life and coping strategies among lung transplant candidates and their family caregivers. Social Sciences & Medicine, 60, 2321-2332.
Nijboer, C., Triemstra, M., Tempelaar, R., Sanderman, R., & Bos, G. A. M. (1999). Determines of caregiving experiences and mental health of Partners of cancer patients. Cancer, 86(4), 577-588.
Northouse, L., Laten, D., & Reddy, P. (1995). Adjustment of women and their husbands to recurrent breast cancer. Research Nursing Health, 18, 515-524.
Northouse, L., Kershaw, T., Mood, D., & Schafenacker, A. (2005). Effects of a family intervention on the quality of life of women with recurrent breast cancer and their family caregivers. Psycho-oncology, 14(6), 478-491.
Northouse, L., & Swain, M.A. (1987). Adjustment of patients and husband to the initial impact of breast cancer. Nursing Research, 36, 221-225.
Northouse, L., Templin, Y., & Mood, D. (2001). Couples’ adjustment to breast disease during the first year following diagnosis. Journal of Behavioral Medicine, 24(2), 115-136.
Northouse, L., Templin, Y., Mood, D., & Oberst, M. (1998). Couples’ adjustment to breast cancer and benign breast disease: a longitudinal analysis. Psycho-oncology, 7, 37-48.
Olsen, A.M., Glasdam, S. (1995). Safety in handling chemotherapy. European Journal of Cancer, 31, 306.
Patricia, A. (2003). Family Caregivers’ Sleep Loss and Depression Over Time. Cancer Nursing, 26(4), 253-259.
Pearlin, L.I., Mullan, J.T., Semple, S.J., & Skaff, M.M. (1990). Caregiving and the stress process: an overview of concepts and their measures. Gerontologist, 30, 583-594.
Petrie W., Logon J., & DeGrasse C., (2001). Research review of the supportive care needs of spouses of women with breast cancer. Oncology Nursing Forum, 28(10), 1601-1607.
Philips L.R., (1999). Assessment of social support. In Stone J.T., Wyman J.F., & Salisbury S. A., eds. Clinical Gerontological Nursing, (2nd ed.)(pp. 155-173). Philadelphia: Saunders W.B. company.
Pitceathly, C., & Maguire, P. (2000). Preventing affective disorders in partners of cancer patients: an intervention study. In Baider L., Cooper C.L., De-Nour A., eds. Cancer and the family, (2nd ed.) (pp. 137-154). Chichester: Wiley.
Pitceathly, C., & Maguire, P. (2003). The psychological impact of cancer on patients’ partner and other relatives: a review. European Journal of Cancer, 39,1517-1524.
Ptacek, J. T., Ptacek J.J., & Dodge, K.L. (1994). Coping with breast cancer from the perspective of husbands and wives. Journal of Psychosocial Oncology, 12, 47-72.
Roberts, S. L. (1987). A framework for coping with stress and its application in patient care. Nursing Forum, 23(3), 101-107.
Sarafino, E.P. (1991). Health psychology. (2nd) New York : Wiley.
Schacter S. (1992). Quality of life for families in the management of home care patients with advanced cancer. Journal of palliative care, 8(3), 61-66.
Schumacher, K.L., Dodd, M.J., & Paul, S.M. (1993). The stress process in family caregivers of persons receiving chemotherapy. Research in Nursing & Health, 16, 395-404.
Siegel, K., Raveis, V. H., Houts, P., & Mor, V. ( 1991). Caregiver burden and unmet patient needs. Cancer Nursing, 14(5), 1131-1140.
Vess, J., Moreland, J., Schwebel, A., & Kraut, E. (1988). Psychosocial needs of cancer patients: learning from patients and their spouses. Journal of Psychosocial Oncology, 6(1/2), 31-51.
Wagner, C. D., Bigatti, S. M., & Storniolo, A.M. (2006). Quality of life of husbands of women with breast cancer. Psycho-oncology, 15, 109-120.
Walker, B. L. (1997). Adjustment of husbands and wives to breast cancer. Cancer Pract, 5, 92-98.
Yeo, W., Kwan, W.H., Teo, P. M. L., Nip, S., Wong, E., Hin, L. Y., et al. (2004). Psychological impact of breast cancer surgeries in Chinese patients and their spouses. Psycho-oncology, 13, 132-139.
Zeidner, M., & Endler, N. S. (1994). Handbook of coping. New York: Wiley.
Zhan, L. (1992). Quality of life: conceptual and measurement issues. Journal of Advanced Nursing, 17, 795-808.