| 研究生: |
范聖育 Fan, Sheng-Yu |
|---|---|
| 論文名稱: |
家庭功能與安寧療護主要照顧者生活品質的相關性探討 The impact of family functioning on the quality of life of primary caregiver in hospice |
| 指導教授: |
柯慧貞
Ko, Huei-Chen 曹朝榮 Tsao, Chao-Jung |
| 學位類別: |
碩士 Master |
| 系所名稱: |
醫學院 - 行為醫學研究所 Institute of Behavioral Medicine |
| 論文出版年: | 2002 |
| 畢業學年度: | 90 |
| 語文別: | 中文 |
| 論文頁數: | 70 |
| 中文關鍵詞: | 安寧療護 、家庭功能 、生活品質 、照顧者 |
| 外文關鍵詞: | Family functioning, Hospice, Primary caregiver, The quality of life |
| 相關次數: | 點閱:102 下載:12 |
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擔任癌末病患的照顧工作會影響照顧者的生活品質。過去研究顯示家庭功能對於照顧者的負荷或是照顧滿意度都有影響;但對於生活品質的影響卻未知。因此本研究的目的有:(1)評估癌末病患照顧者的生活品質;(2)瞭解家庭功能向度與各個照顧者生活品質範疇的相關;(3)探討在不同生活品質範疇中最有預測力的家庭功能向度。
本研究設計採取橫斷式的相關性研究法。收集154位安寧病房中病患的主要照顧者,由其完成基本資料、家庭功能問卷以及生活品質量表。
結果顯示,與一般健康人相比較,主要照顧者的生活品質在生理健康範疇與心理範疇的得分較差。教育年數愈少的照顧者,在生理健康與環境範疇的得分愈差。使用逐步迴歸分析,對於生理健康範疇最有預測力的家庭功能向度為問題解決與溝通。在心理範疇為問題解決與獨立性向度。在社會關係範疇為凝聚力向度。在環境範疇為問題解決向度。在照顧範疇為獨立性向度。
家庭問題解決能力較佳,則照顧者在心理與環境範疇的生活品質較佳;家庭成員的獨立性較高,照顧者在心理與照顧範疇的生活品質較佳;而整體家庭凝聚力高,照顧者的社會關係生活品質較佳。因此在家庭功能方面較重要的預測變項為問題解決、凝聚力以及獨立性向度。未來在提升照顧者之不同生活品質範疇,可設計由這些不同的家庭功能加以介入。
Providing hospice care to terminal patients will affect the quality of life of caregiver. Family functioning is linked to caregiver’s burden and care satisfaction. However, the relationship between family functioning and the quality of life of caregiver in hospice is still unknown. This cross-sectional study was aimed to (1) evaluate the quality of life of caregivers in hospice; (2) examine the correlations between the subdomains of quality of life of caregivers and the dimensions of family functioning; (3) explore the important predictors of subdomains of quality of life in family functioning dimensions. One hundred and fifty-four primary caregivers of cancer patients in hospice were recruited as subjects and administered the demographic form, the Family Function Scale, and the Quality of Life Scale.
The caregivers had lower QOL scores in physical health and psychological domains compared to the norm of the healthy. The caregivers with less education got lower scores in physical health and environment domains. As to the physical health domain, the best predictor on family functioning was problem solving and communication. As to psychological domain, those were problem solving and independence. Regarding social domain, that was cohesion. Regard with environment domain that was problem solving dimension. With respect to caring domain that was independence.
The problem-solving ability of the family is better, and the quality of life of primary caregivers are better in psychological and environment domains. The independence of family members is higher, and the primary caregivers get better scores in psychological and caring domains. And the primary caregivers have better quality of life of social relationship domain in the family with higher cohesion. The results were helpful to identify factors of family functioning that were important for intervention to improve the quality of life of caregiver.
中文部分
王英偉 安寧緩和醫療臨床工作指引。台北市,財團法人中華民國安寧照顧基金會,民國89年。
王淑惠 由家庭功能與性格特質探討婦女憂鬱焦慮之共病現象。 成功大學行為醫學研究所碩士論文,民國90年。
李樹人(民國91年6月11日) 十大死因,癌蟬聯第一。聯合晚報,第3版。
林梅香 肝癌患者家屬主要照顧者的壓力、因應行為與健康狀況相關性之探討。 國防醫學院護理研究所,民國83年。
姚開屏 台灣版世界衛生組織生活品質問卷之發展及使用手冊。 台北市,民國88年。
姚開屏 台灣簡明版世界衛生組織生活品質問卷之發展及使用手冊。 台北市,民國89年。
胡綾真 居家照顧癌症轉移病患之主要照顧者的照顧負荷、憂鬱與生活品質之探討。 私立長庚大學護理研究所,民國88年。
高淑芳 探討家庭功能、社會支持與社區殘病老人照顧者負荷之關係。 國防醫學院護理研究所,民國86年。
徐薇鈞 癌症病患主要照顧者生活品質與社會支持及其相關研究。 高雄醫學院護理研究所,民國86年。
曾紀瑩 癌症患童母親之壓力與調適行為。 台灣大學護理研究所,民國82年。
楊金寶 癌症病童母親的支持系統與病童狀況之調查研究—以白血病童為例。 私立中國文化大學兒童福利研究所,民國79年。
劉雪娥 家屬生活品質量表心理測定學之探討。護理研究,卷1(2):127-135,民國82年。
賴秀美 癌症病患家屬的社會支持與生活適應之關連性研究。 東吳大學社會學研究所,民國81年。
英文部分
Axelsson B, Per-Olow Sjoden. Quality of life of cancer patients and their spouses in palliative home care. Palliative medicine. 12:29-39, 1998.
Beavers WR, Hampson RB. Measuring family competence: the Beavers systems model. Walsh F.(eds) Normal family processes, 2nd. New York, 73-103, 1993.
Biegel DE, Sales E, Schulz R. Family caregiving in chronic illness. Newbury Park: stage publication. 1991.
Blanchard CG, Albrecht TL, Ruckdeschel JC. The crisis of cancer: psychosocial impact on family caregivers. Oncology. 11(1):189-194, 1997.
Bowing A. Measuring disease. Buckingham ;Philadelphia :Open University Press. 1995.
Bowing A. Measuring health: a review of quality of life measurement scales. second edition. Buckingham ;Philadelphia :Open University Press. 1997.
Boyle D, Lee M, Thyer BA. Psychosocial needs of family caregivers of terminally ill patients. Psychological reports. 75:1243-1250, 1994.
Carmen WH, Chang AM. Managing caregiver tasks among family caregivers of cancer patients in Hong Kong. Journal of advanced nursing. 29(2):484-489, 1999.
Carmen WH, Chang AM. Stress associated with tasks for family caregivers of patients with cancer in Hong Kong. Cancer nursing. 22(4):260-265, 1999.
Cella DF. Quality of life: the concept. Journal of palliative care. 8(3):9-13, 1992.
Davies B, Reminer JC, Martens N. Family functioning and its implications for palliative care. Journal of palliative care. 10(1):29-36, 1994.
Epstein NB, Bishop D, Ryan C Miller I & Keitner G. The McMaster model: view of healthy family functioning. Walsh F.(eds) Normal family processes, 2nd. New York, 138-160, 1993.
Ferrans CE. Quality of life: conceptual issues. Seminars in oncology nursing. 6(4):248-254, 1990.
Ferrell BR. The family. In Doyle D, Hanks GWC, MacDonald N (Eds). Oxford textbook of palliative medicine. New York, N.Y.: Oxford university press inc. 909-917, 1998.
Fobair PA, Zabora JR. Family functioning as a resource variable in psychosocial cancer research: issues and measures. The hospice journal. 13(1/2):97-114, 1995.
Fowler FJ, Coppola KM, Teno JM. Methodological challenges for measuring quality of life of care at the end of life. Journal of pain and symptom management. 17(2):114-119, 1999.
Furukawa MM. Meeting the needs of the dying patient’s family. Critical care nurse. 16(1):51-57, 1996.
Hall JE, Kirschling JM. A conceptual framework for caring for families of hospice patients. The hospice journal. 6(2):1-28, 1990.
Hileman JW, Lackey NR, Hassanein RS. Identifying the needs of home caregivers of patients with cancer. Oncology nursing forum. 19(5):771-777, 1992.
Houts PS, Nezu AM, Nezu CM, Bucher JA. The prepared family caregiver: a problem-solving approach to family caregiver education. Patient education and counselling. 27: 63-73, 1996.
Hughes SL, Hurder AG, Weaver FM, Kubal JD & Henderson W. Relationship between caregiver burden and health-related quality of life. The gerontologist. 39(5): 534-545, 1999.
Hull MM. Sources of stress for hospice caregiving families. The hospice journal. 6(2)29-54, 1990.
Hull MM. Coping strategies of family caregivers in hospice homecare. Oncology nursing forum. 19(8)1179-1187, 1992.
Ievers CE, Brown RJ, Lambert RG, Hsu L, & Eckman JR. Family functioning and social support in the adaptation of caregivers of children with sickle cell syndromes. Journal of pediatric psychology. 23(6):377-388,1998.
Jassak PF, Knafl KA. Quality of family life: exploration of a concept. Seminars in oncology nursing. 6(4):298-302, 1990.
Karlin NJ, Retzlaff PD. Psychopathology in caregivers of the chronically ill: personality and clinical syndromes. The hospice journal. 10(3):55-61, 1995.
Kissane DW, Bloch S, Burns WI, Patrick JD, Wallace CS, McKenzie DP. Perceptions of family functioning and cancer. Psycho-oncology. 3:259-269, 1994.
Kristjanson LJ, Leis A, Koop PM, Carriere KC, Mueller B. Family members’ care expectations, care perceptions, and satisfaction with advanced cancer care: results of a multi-site pilot study. Journal of palliative care. 13(4):5-13, 1990.
Lewis FM. The impact of cancer on the family: a critical analysis of the research literature. Patient education and counseling. 269-289, 1986.
Medigovich K. Porock D, Kristjanson LJ, Smith M. Predictors of family satisfaction with an Australian palliative home care service: a test of discrepancy theory. Journal of palliative care. 15(4): 48-56, 1999.
McMillan SC, Mahon M. The impact of hospice services on the quality of life of primary caregivers. Oncology nursing forum. 21(7):1189-1195, 1994.
MontgomeryRJV, Gonyea JG, Hooyman NR. Cargiving and the experience of subjective and objective burden. Family relations. 34: 19-26, 1985.
Muzzin LJ, Anderson NJ, Figueredo AT, Gudelis SO. The experience of cancer. Social science medicine. 38(9):1201-1208, 1994.
Nijbor C, Triemstra M, Tempelaar R, Sanderman R, & Bos G. Determinants of caregiving experiences and mental health of partners of cancer patients. Cancer. 86(4): 577-588, 1999.
Northouse L. The impact of cancer on the family: an overview. International journal of psychiatry in medicine. 14(3): 215-242, 1984.
Olson DH. Circumplex model of marital and family systems: assessing family functioning. Walsh F.(eds) Normal family processes, 2nd. New York, 104-137, 1993.
Ravies VH, Karus DG, Siegel K. Correlates of depressive symptomatology among adult daughter caregivers of a parent with cancer. American cancer society. 19:577-588, 1998.
Robert J, Browne G, Milne C, Spooner L, Gafni A, Young MD et al. Problem-solving counseling for caregivers of the cognitively impaired: effective for whom? Nursing research. 48(3): 162-172, 1999.
Sawyer MG, Spurrier N, Kennedy D, Martin J. The relationship between the quality of life of children with asthma and family functioning. Journal of asthma. 38(3): 279-284, 2001.
Schacter S. Quality of life for families in the management of home care patients with advanced cancer. Journal of palliative care. 8(3):61-66, 1992.
Schulz R, Visintainer P, Williamson GM. Psychiatric and physical morbidity effects of caregiving. Journal of gerontology. 45(5):181-191,1990.
Schulz R, Beach SR. Caregiving as a risk factor for mortality: the caregiver health effects study. JAMA. 282(23): 2215-2219, 1999.
Susan L. Relationship between caregiver burden and health-related quality of life. The gerontologist. 39(5):534-545, 1999.
Thompson RJ, Gil KM, Abrams MR, Philips G. Stress, coping, and psychological adjustment of adults with sickle cell disease. Journal of consulting and clinical psychology. 60(3): 433-440, 1992.
Toseland RW, Blanchard CG, McCallion P. Aproblem solving intervention for caregivers of cancer patients. Social Science and medicine. 40(4): 517-528, 1995.
Walsh F. Conceptualization of normal family processes. Walsh F.(eds) Normal family processes, 2nd. New York, 3-69, 1993.
Weitnzer MA, Jacobsen PB, Wagner H, Friedland JJ. The caregiver quality of life index-cancer(CQOLC) scale: development and validation of an instrument to measure quality of life of the family caregiver of patients with cancer. Quality of life research. 8:55-63, 1999.
Weitnzer MA, McMillan SC. The caregiver quality of life index-cancer (CQOLC) scale: revalidation in a home hospice setting. Journal of palliative care. 15(2): 13-20, 1999.
Weitnzer MA, McMillan SC, Jacobsen PB. Family caregiver quality of life: differences between curative and palliative cancer treatment settings. Journal of pain and symptom management. 17(6):418-428,1999.
Weitzner MA, Haley WE, Chen H. The family caregiver of the older cancer patient. Hematology/oncology clinics of North America. 14(1):269-281, 2000.
Yulia CD, Shuchter S, Hutchin S, Strause L, Burns K and Zisook S. The psychological and physical health of hospice caregivers. Annals of clinical psychiatry. 12(1): 19-27, 2000.