| 研究生: |
柯妙馨 Ko, Miao-Hsin |
|---|---|
| 論文名稱: |
鄉村地區失智家庭照顧需求及複合式支持計畫之可行性初探 Exploring the Family Care Needs for People with Dementia and the Feasibility of Multicomponent Support Program in Rural Community |
| 指導教授: |
王靜枝
Wang, Jing-Jy |
| 學位類別: |
碩士 Master |
| 系所名稱: |
醫學院 - 護理學系 Department of Nursing |
| 論文出版年: | 2022 |
| 畢業學年度: | 110 |
| 語文別: | 中文 |
| 論文頁數: | 110 |
| 中文關鍵詞: | 鄉村 、失智症 、照顧需求 、複合式支持計畫 |
| 外文關鍵詞: | Rural community, Dementia, Care needs, Multicomponent support program |
| 相關次數: | 點閱:97 下載:0 |
| 分享至: |
| 查詢本校圖書館目錄 查詢臺灣博碩士論文知識加值系統 勘誤回報 |
背景:人口高齡化使得失智人口增加,許多居住於鄉村的失智症家庭較難取得資源。因此,探知鄉村失智家庭照顧需求及提供支持照護策略顯得重要。
研究目的:旨在瞭解(1)鄉村地區失智家庭各層面照顧問題,並檢驗失智嚴重程度與照顧需求之差異;(2)介入家庭照顧者失智症複合式支持計畫,並測試其可行性。
研究方法:採混合式研究法於南臺灣鄉村地區進行兩階段研究,第一階段為使用方便取樣調查失智家庭的照顧需求,使用失智照顧需求量表進行橫斷性研究;第二階段提供為期六周的複合式照顧者支持計畫(交錯進行各三次之支持團體及個別諮詢),並於個別諮詢前參考第一階段收集之照顧需求資料以快速了解需求。以照顧者負擔量表、支持團體及諮詢服務滿意度量表,以及非參與觀察法與焦點團體訪談法進行可行性測試,分別於介入前(T1)、介入後(T2)、介入後三個月(T3)進行資料收集。量性資料使用描述性統計、無母數檢定及單因子變異數分析進行資料分析;質性結果則使用內容分析法進行分析。
研究結果:第一階段共收集84對失智家庭,發現:1.失智者照顧問題以精神行為症狀頻次最高(88.1%),其次依序為危險狀況(81%)、睡眠問題(72.6%)與進食問題(65.5%),且問題多集中於中重度失智階段;缺乏足夠的活動安排,以健腦活動最為缺乏。2.家庭照顧者之照顧需求為照顧知識與技巧、心理情緒與社會資源運用。3.不同失智階段照顧者之「照顧負荷」與「溝通技巧需求」有顯著差異(p<.05)。第二階段共有24位家庭照顧者參與研究,其中實驗組8位、控制組16位。支持計畫之可行性測試後發現:鄉村地區失智家庭有獲得支持服務之必要性(需求面),雖執行複合式支持計畫過程遇到某些困境(執行面),照顧者對於支持團體之接受度較侷限(可接受性),但個別諮詢為較可行的服務方案。此外,本研也發現複合式支持計畫能為照顧者帶來額外的收穫(實用性)。
結論:本研究發現鄉村失智家庭有多面向的照顧需求,但因為較封閉故不易介入照護服務。建議未來於鄉村地區實施支持計畫前,能找到當地的「關鍵人物」,成為照顧者可信賴的溝通橋梁,並透過教育來強化照顧者對疾病的認知;也建議可提供個別諮詢服務及視需要進一步介入支持團體。
With the population aging, there were growing numbers of PwDs. However, many family with PwD had difficulty accessing resources in rural areas. Therefore, it is important to identify care needs and provide support strategies for rural family with PwD. The study aims to: (1) identify care problems of family with PwD and examine the differences between care needs and dementia stages, and (2) investigate the feasibility of the multicomponent support program. A two phases mixed methods study was conducted in rural southern Taiwan. A cross-sectional study was conducted using care needs of family with PwD in phase I. A six-week support program including support group and individual consultation based on the findings of needs in Phase I was alternately held in phase II. Data were collected using quantitative questionnaire (CCBI and satisfaction), nonparticipant observation and focus group interview. 84 dyads of care recipients and informal caregivers were recruited in phase I. The results showed: 1. PwDs had multi‑dimensional care problems, of which BPSD was the most common problem (88.1%). 2. Caregivers had diverse needs including dementia knowledge, mental support and social resources. 3. "Caregiver burden" and "communication skills needs" were significantly different at different dementia stages (p< .05). In addition, 24 FCGs participated in phase II. The feasibility test revealed that it was necessary to provide support services to meet diverse demands of family of PwD (Demand). Although there were multiple barriers (Implementation) and caregivers were not preferred support group (Acceptability), individual consultation was still feasible. Besides, caregivers had additional benefits except for "caregiver burden" (Practicality). This study provided preliminary evidence for the feasibility of implementing support program in rural areas. Further studies are needed with larger samples.
中文文獻:
中華民國內政部地政司(2021年9月27日).地政法規。https://reurl.cc/xE90b5
王守訥、張佳琪、李碧霞(2016).失智患者進食困難探討.護理雜誌,63(4),128- 134。https://doi.org/10.6224/ JN.63.4.128。
江昆原、范聖育、張玲慧、張文芸、白明奇、王靜枝(2020).失智症家庭照護需求評估表之發展與信效度測試.護理雜誌,67(4),39-49。
巫瑩慧(2009).失智症照顧者罹病率高自我關照很重要.健康世界,(287),85-86。
宋鎮照(2000).團體動力學(初版).五南圖書出版股份有限公司。
呂昀霖、陳靜誼、孫逸民、陳耘葳、黃珮珺、楊雅年(2016).失智老人機構與家庭照顧者身心健康探討.休閒運動保健學報,10,20-36。https://doi.org/10.6204/JRSHP.2016.02.03。
林茂榮、蔡素蘭、陳淑雅、曾信嘉(2002).台灣中部某鄉村社區老人跌倒之危險因子.台灣衛誌,21(1),73-82。
邱逸榛、李怡濃、徐文俊、陳獻宗、李佳琳、王鵬智(2010).失智症家庭照顧者睡眠障礙及其相關因素.護理雜誌,57(4),29-39。
屏東縣政府社會處(2021,9月22日).家庭照顧者服務(簡介)。
https://www.pthg.gov.tw/planjdp/cp.aspx?n=B808E022206BD40E&s=FCE77DC1DBD00D4A
侯建州(2015).失智症家庭vs失智症日間照顧服務之供需分析─以臺灣某失智症日間照顧中心為例.兒童青少年與家庭社會工作評論,3,245-257。
施姵宇、古鯉榕、白明奇、劉立凡(2017).失智症家庭使用長期照顧服務的情形與不使用的原因.台灣衛誌,36(4),375-385。
馬先芝(2003).照顧者負荷之概念分析.護理雜誌,50(2),82-86。
徐亞瑛、楊清姿、葉炳強(1996).痴呆症患者及家庭之整合性社區居家照顧模式-發展與評估.高雄醫學科學雜誌,12(6),359-369。
陳昱名(2013).老年失智症病患家庭照顧者之照顧負荷.崇仁學報,7,1-22。
國家教育研究院(2002年,無日期).環境科學大辭典-可行性研究。
https://terms.naer.edu.tw/detail/1316583/
陳偲宓、劉立凡(2021).從失智症家庭照顧者的需求探討線上支持平台的開發.福祉科技與服務管理學刊,9(1),37-55。
梁明皓、魏惠娟、郭書馨(2020).高齡者自我效能、自尊對憂鬱傾向之影響:雲林縣兩沿海鄉鎮的現況.福祉科技與服務管理學刊,8(2),100-116。
陳信豪、劉雪娥、黃秀梨(2018).AD8量表於社區及醫療院所篩檢認知障礙準確性之系統性文獻回顧.台灣老年醫學暨老年學雜誌,13(1),1-12。
郭穎樺、劉文良、甄瑞興(2014).中文修訂版照顧者負擔量表測量失智症主要照顧者負擔之信效度.北市醫學雜誌,11(1),63-76。
陳宜家、林奕宇、王鵬智、陳益乾、黃長治、林敬恩(2020).女性失智症家庭照顧者之自我效能、積極因應、正向照顧經驗與幸福感之關係研究.台灣老年醫學暨老年學會雜誌,15(2),84-99。
黃美鳳(2008).失智症患者之照顧者因應策略與照顧者負荷之相關及改善因應策略以減低負荷之介入研究〔未發表的碩士論文〕.高雄醫學大學。
曾煥裕(2020).失智症家庭照顧者人口特質、社會支持需求與長期照顧服務需求之關係初探.福祉科技與服務管理學刊,8(2),148-176。
黃美蓉、賴倩瑜、陳正生、陳孝範、林佑蓉(2015).居家護理諮商對失智症照顧者照顧負荷之成效.精神衛生護理雜誌,10(2),19-25。
黃惠玲、徐亞瑛、黃秀梨、陳獻宗(2008).失智症照顧服務之可行模式.研考雙月刊,32(6),22-33。
黃惠玲、徐亞瑛、徐文俊、黃慈心(2015).以能力為基礎的失智症衛教師訓練課程模式.長庚科技學刊,23,23-34。
湯麗玉、葉炳強、陳良娟、謝碧容(2000).失智症家屬支持團體成效初探.應用心理研究,(7),171-190。
楊佩琪(1990).老年癡呆症病患家屬之壓力與需求探討.當代社會工作學刊,(1),147-172。
楊嘉玲、孫惠玲(2003).「照顧者負荷」概念分析.馬偕護理專科學校學報,3,15-27。
楊政峯、王靜枝、楊美鳳、張建慧、張文芸、白明奇(2015).整合式失智症照護門診.台灣醫學,19(4),394-401。
熊德筠(1990).如何應用支持性團體協助病人.護理雜誌,37(2),91-96。
衛生福利部(2018,6月無日期).失智症防治照護政策綱領暨行動方案2.0(含工作項目)。https://www.mohw.gov.tw/dl-46487-c1f9bf66-a9e4-4d5b-b6fa-faad1547157b.html
衛生福利部(2014,9月5日).失智症防治照護政策綱領暨行動方案。https://1966.gov.tw/LTC/cp-4020-44217-201.html
衛生福利部(2017,2月無日期).失智症診療手冊。file:///C:/Users/I2401/Downloads/%E5%A4%B1%E6%99%BA%E7%97%87%E8%A8%BA%E7%99%82%E6%89%8B%E5%86%8A1060223%20(3).pdf
衛生福利部(2017,12月15日).健全老年照顧環境實現安心幸福人生。
http://www2.mohwpaper.tw/inside02.php?type=history&cid=419&pos=a
衛生福利部(2018,3月7日).長照政策專區長照十年2.0計畫。
https://1966. gov.tw/LTC/mp-201.html
鄭秀容、曾月霞(2008).居家失智老人家屬照顧者照顧需求及需求被滿足情形之研究.榮總護理,25(4),386-392。
蔡佳容、蔡榮順、李佩怡(2016).失智症家庭照顧者之受苦與因應經驗研究.中華輔導與諮商學報,47,59-90。
鄧桂芬、李玉春、楊哲銘、黃國哲(2019).影響台灣家庭使用長照十年計劃 2.0的相關因素分析.台灣衛誌,38(5),521-536。
劉介宇、洪永泰、莊義利、陳怡如、翁文舜、劉季鑫、梁賡義(2006).台灣地區鄉鎮市區發展類型應用於大型健康調查抽樣設計之研究,健康管理學刊,4(1),1-22。
謝沛錡、林麗嬋(2014).失智症的機構照護:由日間照護到護理之家.應用心理研究,60,85- 113。
蕭華岑、梁子明、陳乃菁(2020).失智症照護者的營養知識與不同嚴重度失智症患者飲食攝取的調查報告.臺灣營養學會雜誌,44(4),112-126。https://doi.org/10.6691/NSJ.202012_44(4).0002。
簡伶育(2010).失智症照顧者支持團體之統合分析研究〔未發表的碩士論文〕.臺北醫學大學護理學系。
英文文獻
Alzheimer Disease International. (2018). World Alzheimer Report London: Alzheimer's Disease International press. https://www.alz.co.uk/ research/world-report-2018/.
Algase, D. L. (2007). Advances in dementia care: A themed issue. Research and Theory for Nursing Practice, 21(1), 3-4.
Au, A., Lau, K. M., Sit, E., Cheung, G., Lai, M. K., Wong, S. K. A., & Fok, D. (2010). The role of self-efficacy in the Alzheimer's family caregiver stress process: A partial mediator between physical health and depressive symptoms. Clinical Gerontologist, 33(4), 298-315.
Allen, A. P., Buckley, M. M., Cryan, J. F., Ní Chorcoráin, A., Dinan, T. G., Kearney, P. M., O'Caoimh, R., Calnan, M., Clarke, G & Molloy, D. W. (2019). Informal caregiving for dementia patients: the contribution of patient characteristics and behaviours to caregiver burden. Age and Ageing, 49(1), 52-56.
Bastawrous, M. (2013). Caregiver burden—A critical discussion. International Journal of Nursing Studies, 50(3), 431-441.
Brodaty, H. & Finkel, S. I. (2012). Module 4 Role of caregivers. In B. Draper, H. Brodaty, and S. I. Finkel (Ed.), The IPA Complete Guides to Behaviroal and Psychological Symptoms of Dementia. Northfield, IL, USA: International Psychogeriatric Association.
Browning, J. S., & Schwirian, P. M. (1994). Spousal caregivers’burden: Impact of care recipient health problems and mental status. Journal of Gerontolological Nursing, 20(3), 17-22.
Bryan, K., & Maxim, J. (2006). Communication disability in the dementias. John Wiley & Sons.
Batchelor, F. A., Dow, B., & Low, M. A. (2013). Do continence management strategies reduce falls? A systematic review. Australasian Journal on Ageing, 32(4), 211-216. https://doi.org/10.1111/ajag.12047.
Bedford, S., Melzer, D., & Guralnik, J. (2001). Problem behavior in the last year of life: prevalence, risks, and care receipt in older Americans. Journal of the American Geriatrics Society, 49, 590-595.
Baharudin, A. D., Din, N. C., Subramaniam, P., & Razali, R. (2019). The associations between behavioral-psychological symptoms of dementia (BPSD) and coping strategy, burden of care and personality style among low-income caregivers of patients with dementia. BMC Public Health, 19(4), 1-12.
Bieber, A., Nguyen, N., Meyer, G., & Stephan, A. (2019). Influences on the access to and use of formal community care by people with dementia and their informal caregivers: A scoping review. BMC Health Services Research, 19(1), 1–21.
https://doi.org/10.1186/s12913-018-3825-z
Bourke, L., Humphreys, J., Wakerman, J., & Taylor, J. (2012). Understanding rural and remote health: A framework for analysis in Australia. Health & Place, 18(3), 496–503. https://doi.org/10.1016/j.healthplace.2012.02.009
Bauer, M., Fetherstonhaugh, D., Blackberry, I., Farmer, J., & Wilding, C. (2019). Identifying support needs to improve rural dementia services for people with dementia and their carers: A consultation study in Victoria, Australia. Australian Journal of Rural Health, 27(1), 22-27.
Bayly, M., Morgan, D., Chow, A. F., Kosteniuk, J., & Elliot, V. (2020). Dementia-related education and support service availability, accessibility, and use in rural areas: barriers and solutions. Canadian Journal on Aging/La Revue canadienne du vieillissement, 39(4), 545-585.
Black, B. S., Johnston, D., Rabins, P. V., Morrison, A., Lyketsos, C., & Samus, Q. M. (2013). Unmet needs of community‐residing persons with dementia and their informal caregivers: Findings from the maximizing independence at jome study. Journal of the American Geriatrics Society, 61(12), 2087–2095. https://doi.org/10.1111/jgs.12549
Bárrios, H., Narciso, S., Guerreiro, M., Maroco, J., Logsdon, R., & de Mendonça, A. (2013). Quality of life in patients with mild cognitive impairment. Aging & Mental Health, 17(3), 287-292.
Brodaty, H., Woodward, M., Boundy, K., Ames, D., Balshaw, R., & PRIME Study Group. (2014). Prevalence and predictors of burden in caregivers of people with dementia. The American Journal of Geriatric Psychiatry, 22(8), 756-765.
Boucher, A., Haesebaert, J., Freitas, A., Adekpedjou, R., Landry, M., Bourassa, H., Stacey, D., Croteau J., Geneviève, P. G & Légaré, F. (2019). Time to move? Factors associated with burden of care among informal caregivers of cognitively impaired older people facing housing decisions: secondary analysis of a cluster randomized trial. BMC Geriatrics, 19(1), 1-11.
Bowen, D. J., Kreuter, M., Spring, B., Cofta-Woerpel, L., Linnan, L., Weiner, D., Bakken,
S., Kaplan, C. P., Squiers, L., Fabrizio, C., & Fernandez, M. (2009). How we design feasibility studies. American Journal of Preventive Medicine, 36(5), 452-457.
Cohen, J. (1988). Statistical Power Analysis for the Behavioral Sciences. New Jersey: Lawrence Erlbaum.
Creswell, J. W. (2003). Research design: Qualitative, quantitative, and mixed methods approaches. London, England: Sage.
Chang, C. Y., & Hsu, H. C. (2020). Relationship between knowledge and types of attitudes towards people living with dementia. International Journal of Environmental Research and Public Health, 17(11), 3777.
Chien, H. J., & Tann, D. B. (2019). Study of an educational programme in dementia care for family carers in Taiwan. Educational Gerontology, 45(2), 94-104.
Chien, W. T., & Lee, Y. M. (2008). A disease management program for families of persons in Hong Kong with dementia. Psychiatric Services, 59(4), 433-436.
Chen, Y. M., & Thompson, E. A. (2010). Understanding factors that influence success of home-and community-based services in keeping older adults in community settings. Journal of Aging and Health, 22(3), 267-291.
Clyburn, L. D., Stones, M. J., Hadjistavropoulos, T., & Tuokko, H. (2000). Predicting caregiver burden and depression in Alzheimer’s disease. The Journals of Gerontology. Series B: Psychological Sciences and Social Sciences, 55, S2-13. http://doi.org/10.1093/geronb/55.1.S2
Clissett, P., Porock, D., Harwood, R. H., & Gladman, J. R. F. (2013). The challenges of achieving person-centred care in acute hospitals: A qualitative study of people with dementia and their families. International Journal of Nursing Studies, 50(11), 1495–1503. http://doi.org/10.1016/j.ijnurstu .2013.03.001
Chang, C. H., Ming, Y., Chang, T. H., Yen, Y. Y., & Lan, S. J. (2020). The Needs and Utilization of Long-Term Care Service Resources by Dementia Family Caregivers and the Affecting Factors. International Journal of Environmental Research and Public Health, 17(16), 6009.
Cipriani, G., Carlesi, C., Lucetti, C., Danti, S., & Nuti, A. (2016). Eating behaviors and dietary changes in patients with dementia. American Journal of Alzheimer's Disease & Other Dementias, 31(8), 706-716.
Chu, H., Yang, C. Y., Liao, Y. H., Chang, L. I., Chen, C. H., Lin, C. C., & Chou, K. R. (2011). The effects of a support group on dementia caregivers’burden and depression. Journal of Aging and Health, 23(2), 228-241.
Chien, L. Y., Chu, H., Guo, J. L., Liao, Y. M., Chang, L. I., Chen, C. H., & Chou, K. R. (2011). Caregiver support groups in patients with dementia: a meta‐analysis. International Journal of Geriatric Psychiatry, 26(10), 1089-1098.
Chang, M., Huang, H. L., Yip, P., Tang, S., Chang, H., Wu, S., & Yu, L. (2008, June). Development of a Community -Based Dementia Care Model in Taipei. In M. Chang & R. Yeoh (Moderator). Greetings from the secretariat of 11th Asia-Pacific Regional Conference of ADI, Taipei, Taiwan.
Chuang, Y. F., Liu, Y. C., Tseng, H. Y., Lin, P. X., Li, C. Y., Shih, M. H., Lin, K. C., Yang, T. O., Yan, S. H., & Chiu, Y. L. (2021). Urban-rural differences in the prevalence and correlates of mild cognitive
impairment in community-dwelling older adults in Taiwan: The EMCIT study. Journal of the Formosan Medical Association, 120(9), 1749-1757.
Di Gregorio, D., Ferguson, S., & Wiersma, E. (2015). From beginning to end: Perspectives of the dementia journal in northern Ontario. Canadian Journal on Aging, 34(1), 100–112. https://doi.org/10.1017/S0714980814000531
Dam, A. E., de Vugt, M. E., Klinkenberg, I. P., Verhey, F. R., & van Boxtel, M. P. (2016). A systematic review of social support interventions for caregivers of people with dementia: Are they doing what they promise? Maturitas, 85, 117-130.
Diniz, B. S., Butters, M. A., Albert, S. M., Dew, M. A., & Reynolds, C. F. (2013). Late-life depression and risk of vascular dementia and Alzheimer's disease: systematic review and meta-analysis of community-based cohort studies. The British Journal of Psychiatry, 202(5), 329-335.
Dickinson, C., Dow, J., Gibson, G., Hayes, L., Robalino, S., & Robinson, L. (2017). Psychosocial intervention for carers of people with dementia: What components are most effective and when? A systematic review of systematic reviews. International Psychogeriatrics, 19(1), 31-43. http://doi.org/10.1017/S1041610216001447
Edwards, M. (1990). Support groups for caregivers of Alzheimer's disease victims:The nurse's role. In C. Eliopoulos. (Eds.), Caring for the elderly in diverse care settings. (0nd ed., pp. 1-439). Lippincott Williams & Wilkins.
Ervin, K., & Reid, C. (2015). Service utilization by carers of people with dementia in rural Victoria. Australasian Journal on Ageing, 34(4), E1–E6. http://doi.org/10.1111/ajag.12162
Ehrlich, K., Emami, A., & Heikkilä, K. (2017). The relationship between geographical and social space and approaches to care among rural and urban caregivers caring for a family member with Dementia: A qualitative study. International Journal of Qualitative Studies on Health and Well-being, 12(1), 1–11. https://doi.org/10.1080/17482631.2016.1275107
Etters, L., Goodall, D., & Harrison, B. E. (2008). Caregiver burden among dementia patient caregivers: A review of the literature. Journal of the American Academy of Nurse Practitioners, 20, 423-428.
Fortinsky, R. H., & Hathaway, T. J. (1990). Information and service needs among active and former family caregivers of persons with Alzheimer’s disease. The Gerontologist, 30, 604-609.
Friedman, E. M., Shih, R. A., Langa, K. M., & Hurd, M. D. (2015). US prevalence and predictors of informal caregiving for dementia. Health Affairs, 34(10), 1637–1641. https://doi.org/10.1377/hlthaff.2015.0510
Ferrara, M., Langiano, E., Di Brango, T., Di Cioccio, L., Bauco, C., & De Vito, E. (2008). Prevalence of stress, anxiety and depression in with Alzheimer caregivers. Health and Quality of life Outcomes, 6(1), 1-5. http://doi.org/10.1186/1477-7525-6-93
Gibson, A., Holmes, S. D., Fields, N. L., & Richardson, V. E. (2019). Providing care for persons with dementia in rural communities: Informal caregivers’perceptions of supports and services. Journal of Gerontological Social Work, 62(6), 630-648.
Galvin, J. E., Roe, C. M., Powlishta, K. K., Coats, M. A., Muich, S. J., Grant, E., Miller, J. P., Storandt, M., & Morris, J. C. (2005). The AD8: a brief informant interview to detect dementia. Neurology, 65(4), 559-564.
Herron, R. V., & Rosenberg, M. W. (2017). “Not there yet”: Examining community support from the perspective of people with dementia and their partners in care. Social Science & Medicine, 173, 81–87. https://doi.org/10.1016/j.socscimed. 2016.11.041
Herron, R. V., Rosenberg, M. W., & Skinner, M. W. (2016). The dynamics of voluntarism in rural dementia care. Health & Place, 41, 34–41. http://doi.org/10.1016/j.healthplace.2016.06.008
Han, S. J., Lee, S., Kim, J. Y., & Kim, H. (2014). Factors associated with family caregiver burden for patients with dementia: a literature review. Journal of Korean Gerontological Nursing, 16(3), 242-254.
Han, J. W., Jeong, H., Park, J. Y., Kim, T. H., Lee, D. Y., Lee, D. W., Ryu, S. H., Kim, S. K., Yoon, J. C., Jhoo, J. H., Kim, J. L., Lee, S. B., Lee, J. J., Kwak, K. P., Kim, B. J., Park, J. H., Kim, K. W. (2014). Effects of social supports on burden in caregivers of people with dementia. International Psychogeriatrics, 26(10), 1639-1648.
Jensen, M., Agbata, I. N., Canavan, M., & McCarthy, G. (2015). Effectiveness of educational interventions for informal caregivers of individuals with dementia residing in the community: Systematic review and meta‐analysis of randomised controlled trials. International Journal of Geriatric Psychiatry, 30(2), 130-143. https://doi.org/10.1002/gps.4208
Kim, E. K., & Park, H. (2019). Factors associated with burden of family caregivers of home-dwelling elderly people with dementia: a systematic review and meta-analysis. Korean Journal of Adult Nursing, 31(4), 351-364.
Keene, J., & Hope, T. (1998). Natural history of hyperphagia and other eating changes in dementia. International Journal of Geriatric Psychiatry, 13(10), 700-706.
Kahan, J., Kemp, B., Staples, F. R., & Brummel‐Smith, K. (1985). Decreasing the burden in families caring for a relative with a dementing illness: A controlled study. Journal of the American Geriatrics Society, 33(10), 664-670.
Küçükgüçlü, Ö., Söylemez, B. A., Yener, G., & Işık, A. T. (2018). The effects of support groups on dementia caregivers: A mixed method study. Geriatric Nursing, 39(2), 151-156.
Kim, H. J., Kim, J. W., Jang, S. N., Do Kim, K., Yoo, J. I., & Ha, Y. C. (2018). Urinary incontinences are related with fall and fragility fractures in elderly population: nationwide cohort study. Journal of Bone Metabolism, 25(4), 267-274.
Kai, K., Hashimoto, M., Amano, K., Tanaka, H., Fukuhara, R., & Ikeda, M. (2015). Relationship between eating disturbance and dementia severity in patients with Alzheimer’s disease. PloS ONE, 10(8), e0133666. https://doi.org/10.1371/journal.pone.0133666
Krutter, S., Schaffler‐Schaden, D., Eßl‐Maurer, R., Seymer, A., Osterbrink, J., & Flamm, M. (2022). Home care nursing for persons with dementia from a family caregivers' point of view: Predictors of utilisation in a rural setting in Austria. Health & Social Care in the Community, 30(1), 389-399.
Kimura, A., Sugimoto, T., Kitamori, K., Saji, N., Niida, S., Toba, K., & Sakurai, T. (2019). Malnutrition is associated with behavioral and psychiatric symptoms of dementia in older women with mild cognitive impairment and early-stage Alzheimer’s disease. Nutrients, 11(8), 1951.
Liu, C. C., Li, C. Y., Sun, Y., & Hu, S. C. (2019). Gender and age differences and the trend in the incidence and prevalence of dementia and Alzheimer’s disease in Taiwan: A 7-Year national population-based study. BioMed Research International. https://doi.org/10.1155/2019/5378540
Li, T., Wang, H. L., Yang, Y. H., Galvin, J. E., Morris, J. C., & Yu, X. (2012). The reliability and validity of Chinese version of AD8. Zhonghua Nei Ke Za Zhi, 51(10), 777-780.
Middleton, L. (1984). Alzheimer's family support groups: A manual for group facilitators. US Department of Health and Human Services, Office of Human Development Services, Administration on Aging.
Morrisby, C., Joosten, A., & Ciccarelli, M. (2018). Do services meet the needs of people with dementia and carers living in the community? A scoping review of the international literature. International Psychogeriatrics, 30(1), 5–14. https://doi.org/10.1017/S1041610217001491
Morgan, D., Innes, A., & Kosteniuk, J. (2011). Dementia care in rural and remote settings: A systematic review of formal or paid care. Maturitas, 68(1), 17-33.
Macleod, A., Tatangelo, G., McCabe, M., & You, E. (2017). “There isn’t an easy way of finding the help that’s available.” Barriers and facilitators of service use among dementia family caregivers: A qualitative study. International Psychogeriatrics, 29(5), 765–776. http://doi.org/10.1017/ S1041610216002532
Mukherjee, A., Biswas, A., Roy, A., Biswas, S., Gangopadhyay, G., & Das, S. K. (2017). Behavioural and psychological symptoms of dementia: correlates and impact on caregiver distress. Dementia and Geriatric Cognitive Disorders Extra, 7(3), 354-365. https://doi.org/10.1159/000481568.
Morgan, D. G., Kosteniuk, J. G., Stewart, N. J., O’Connell, M. E., Kirk, A., Crossley, M., Bello-Haas, V. D., Forbes, D., & Innes, A. (2015). Availability and primary health care orientation of dementia-related services in rural Saskatchewan, Canada. Home Health Care Services Quarterly, 34(3-4), 137-158.
Morgan, D., Kosteniuk, J., O’Connell, M. E., Kirk, A., Stewart, N. J., Seitz, D., Bayly, M., Chow, A. F., Elliot, V., Daku, J., Hack, T., Hoium, F., Kennett-Russill, D., & Sauter, K. (2019). Barriers and facilitators to development and implementation of a rural primary health care intervention for dementia: a process evaluation. BMC Health Services Research, 19(1), 1-18.
Novak, M., & Guest, C. (1989). Application of a multidimensional caregiver burden inventory. The Gerontologist, 29(6), 798-803.
OECD iLibrary. (2016,October 11). Understanding rural economies.
https://www.oecd-ilibrary.org/sites/9789264260245-6- en/index.html itemId=/content/component/9789264260245-6-en
Ornstein, K., & Gaugler, J. E. (2012). The problem with “problem behaviors”: a systematic review of the association between individual patient behavioral and psychological symptoms and caregiver depression and burden within the dementia patient–caregiver dyad. International Psychogeriatrics, 24(10), 1536.
Pinquart, M., & Sörensen, S. (2004). Associations of caregiver stressors and uplifts with subjective well-being and depressive mood: A meta-analytic comparison. Aging & Mental Health, 8(5), 438-449. https://doi.org/10.1080/13607860410001725036
Pinquart, M., & Sorensen, S. (2006). Helping caregivers of persons with dementia: Which interventions work and how large are their effects? International Psychogeriatrics, 18, 577-595.
Prorok, J. C., Horgan, S., & Seitz, D. P. (2013). Health care experiences of people with dementia and their caregivers: A meta-ethnographic analysis of qualitative studies. Canadian Medical Association Journal, 185(14), E669–E680. https://doi.org/10.1503/cmaj.121795
Phillipson, L., Jones, S. C., & Magee, C. (2014). A review of the factors associated with the non-use of respite services by carers of people with dementia: Implications for policy and practice. Health and Social Care in the Community, 22(1), 1–12. https://doi.org/10.1111/hsc.12036
Pearlin, L. I., Mullan, J. T., Semple, S. J., & Skaff, M. M. (1990). Caregiving and the stress process: An overview of concepts of and their measures. The Gerontologist, 30(5), 583-594.
Park, M., Sung, M., Kim, S. K., Kim, S., & Lee, D. Y. (2015). Multidimensional determinants of family caregiver burden in Alzheimer's disease. International Psychogeriatrics, 27(8), 1355.
Prince, M., Comas-Herrera, A., Knapp, M., Guerchet, M., & Karagiannidou, M. (2016). World Alzheimer report 2016: Improving Healthcare for People Living with Dementia: Coverage, Quality and Costs Now and in the Future. London: Alzheimer’s Disease International.
Purtle, J., Nelson, K. L., Yang, Y., Langellier, B., Stankov, I., & Roux, A. V. D. (2019). Urban–rural differences in older adult depression: A systematic review and meta-analysis of comparative studies. American Journal of Preventive Medicine, 56(4), 603-613.
Prince, M., Wimo, A., Guerchat, M., Ali, G. C., Wu, T. T., & Prina, M. (2015). World
Alzheimer Report 2015: The global impact of dementia. Alzheimer’s Disease
International. https://www.alz.co.uk/research/WorldAlzheimerReport2015.pdf
Poirier, A., Voyer, P., Légaré, F., Morin, M., Witteman, H. O., Kröger, E., Kroger, E., Martineau, B., Rodriguez, C., Giguere, A. M. (2018). Caring for seniors living with dementia means caring for their caregivers too. Canadian Journal of Public Health, 108(5–6), 639–642. https://doi.org/10.17269/cjph.108.6217
Ruggiano, N., Brown, E. L., Li, J., & Scaccianoce, M. (2018). Rural dementia caregivers and technology: what is the evidence? Research in Gerontological Nursing, 11(4), 216-224.
Richardson, T. J., Lee, S. J., Berg-Weger, M., & Grossberg, G. T. (2013). Caregiver health: health of caregivers of Alzheimer’s and other dementia patients. Current Psychiatry Reports, 15(7), 367.
Rosness, T. A., Haugen, P. K., Gausdal, M., Gjøra, L., & Engedal, K. (2012). Carers of patients with early-onset dementia, their burden and needs: A pilot study using a new questionnaire--care-EOD. International Journal of Geriatric Psychiatry, 27(10), 1095-1096.
Reed, C., Belger, M., Andrews, J. S., Tockhorn-Heidenreich, A., Jones, R. W., Wimo, A., Dodel R & Haro, J. M. (2020). Factors associated with long-term impact on informal caregivers during Alzheimer’s Disease dementia progression: 36-month results from GERAS. International Psychogeriatrics, 32(2), 267-277.
Schulz, R., & Beach, S. R. (1999). Caregiving as a risk factor for mortality: the Caregiver Health Effects Study. JAMA, 282(23), 2215-2219.
Schoenmakers, B., Buntinx, F., & Delepeleire, J. (2010). Factors determining the impact of care-giving on caregivers of elderly patients with dementia. A systematic literature review. Maturitas, 66(2), 191-200.
Savundranayagam, M. Y., Hummert, M. L., & Montgomery, R. J. (2005). Investigating the effects of communication problems on caregiver burden. The Journals of Gerontology Series B: Psychological Sciences and Social Sciences, 60(1), S48-S55.
Sallim, A. B., Sayampanathan, A. A., Cuttilan, A., & Ho, R. C. M. (2015). Prevalence of mental health disorders among caregivers of patients with Alzheimer disease. Journal of the American Medical Directors Association, 16(12), 1034-1041.
Shearer, J., Green, C., Ritchie, C. W., & Zajicek, J. P. (2012). Health state values for use in the economic evaluation of treatments for Alzheimer’s disease. Drugs & Aging, 29(1), 31-43.
Stirling, C., Andrews, S., Croft, T., Vickers, J., Turner, P., & Robinson, A. (2010). Measuring dementia carers' unmet need for services-an exploratory mixed method study. BMC Health Services Research, 10(1), 1-10.
Scharett, E., Madathil, K. C., Lopes, S., Rogers, H., Agnisarman, S., Narasimha, S., Ashok, A., & Dye, C. (2017). An investigation of the information sought by caregivers of Alzheimer's patients on online peer support groups. Cyberpsychology, Behavior, and Social networking, 20(10), 640-657.
Shlisky, J., Bloom, D. E., Beaudreault, A. R., Tucker, K. L., Keller, H. H., Freund-Levi, Y., Fielding, R. A., Cheng, F. W., Jensen, G. L., Wu, D., & Meydani, S. N. (2017). Nutritional considerations for healthy aging and reduction in age-related chronic disease. Advances in Nutrition, 8(1), 17.
Tang, L. Y., Yip, P. K., Wu, E. C., & Leung, K. K. (2006). The development and validation of a dementia behavior disturbance inventory. International Psychogeriatrics, 18(1), 95-110. http://doi.org/10.1017/S1041610205002164
Toot, S., Swinson, T., Devine, M., Challis, D., & Orrell, M. (2017). Causes of nursing home placement for older people with dementia: a systematic review and meta-analysis. International Psychogeriatrics, 29(2), 195-208.
Van der Lee, J., Bakker, T. J., Duivenvoorden, H. J., & Dröes, R. M. (2014). Multivariate models of subjective caregiver burden in dementia: a systematic review. Ageing Research Reviews, 15, 76-93.
World Health Organization. (2012). Dementia cases set to triple by 2050 but still largely ignored. Neuroscience, 17, 296-297.
Wang, L. Q., & Chien, W. T. (2011). Randomised controlled trial of a family‐led mutual support programme for people with dementia. Journal of Clinical Nursing, 20(15–16), 2362-2366.
Whitlatch, C. J., & Orsulic-Jeras, S. (2018). Meeting the informational, educational, and psychosocial support needs of persons living with dementia and their family caregivers. The Gerontologist, 58(suppl_1), S58-S73.
Wiersma, E. C., & Denton, A. (2016). From social network to safety net: Dementia-friendly communities in rural northern Ontario. Dementia, 15(1), 51-68.
Wilz, G., & Pfeiffer, K. (2017). Psychotherapie mit älteren pflegenden Angehörigen. Der Nervenarzt, 88(11), 1246-1251.
Weden, M. M., Shih, R. A., Kabeto, M. U., & Langa, K. M. (2018). Secular trends in dementia and cognitive impairment of US rural and urban older adults. American Journal of Preventive Medicine, 54(2), 164-172.
Wu, B., Petrovsky, D. V., Wang, J., Xu, H., Zhu, Z., McConnell, E. S., & Corrazzini, K. N. (2019). Dementia caregiver interventions in Chinese people: a systematic review. Journal of Advanced Nursing, 75(3), 528-542.
Yalom, I. D. (1995). The theory and practice of group psychotherapy (4th ed.). Basic Books.
Yang, Y. H., Galvin, J. E., Morris, J. C., Lai, C. L., Chou, M. C., & Liu, C. K. (2011). Application of AD8 questionnaire to screen very mild dementia in Taiwanese. American Journal of Alzheimer's Disease & Other Dementia, 26(2), 134-138.
Zandi T. (1990). Psychological Difficulties of Caring for Dementia Patients: The Role of Support Groups. In T. Zandi & R.J. Ham (Eds.), Advances in Experimental Medicine and Biology (pp. 113-120). Springer. https://doi.org/10.1007/978-1-4613-0665-8_10
Zwaanswijk, M., Peeters, J. M., Van Beek, A. P., Meerveld, J. H., & Francke, A. L. (2013). Informal caregivers of people with dementia: problems, needs and support in the initial stage and in subsequent stages of dementia: a questionnaire survey. The Open Nursing Journal, 7, 6.
Zarit, S. H., Kim, K., Femia, E. E., Almeida, D. M., Savla, J., & Molenaar, P. C. (2011). Effects of adult day care on daily stress of caregivers: A within-person approach. Journals of Gerontology Series B: Psychological Sciences and Social Sciences, 66(5), 538-546. http://doi.org/10.1093/geronb/gbr030
Zwingmann, I., Dreier-Wolfgramm, A., Esser, A., Wucherer, D., Thyrian, J. R., Eichler, T., Kaczynski, A., Monsees, J., Keller, A., Hertel, J., Kilimann, I., Teipel, S., Michalowsky, B., & Hoffmann, W. (2020). Why do family dementia caregivers reject caregiver support services? Analyzing types of rejection and associated health-impairments in a cluster-randomized controlled intervention trial. BMC Health Services Research, 20(1), 1-11.
Zwingmann, I., Michalowsky, B., Esser, A., Kaczynski, A., Monsees, J., Keller, A., Hertel,
J., Wucherer, D., Thyrian, J. R., Eichler, T., Kilimann, I., Teipel, S., Wolfgramm,A. D., & Hoffmann, W. (2019). Identifying unmet needs of family dementia caregivers: results of the baseline assessment of a cluster-randomized controlled intervention trial. Journal of Alzheimer's Disease, 67(2), 527-539.
校內:2025-12-31公開