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研究生: 吳珮菁
Wu, Pei-Ching
論文名稱: 巴金森病人之職能活動與生活品質相關性探討
The relationship between occupations and quality of life in patients with Parkinson's Disease
指導教授: 馬慧英
Ma, Hui-Ing
學位類別: 碩士
Master
系所名稱: 醫學院 - 職能治療學系
Department of Occupational Therapy
論文出版年: 2007
畢業學年度: 95
語文別: 中文
論文頁數: 116
中文關鍵詞: 生活品質活動活動受限職能活動巴金森病
外文關鍵詞: activity limitation, activity, Parkinson’s Disease, occupation, quality of life
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  • 研究背景與目的:巴金森病是一種進行性慢性動作疾患,對於巴金森病的健康照護議題,也是近年來新興的研究方向;目前針對巴金森病人生活品質的研究,多著重在探討其影響因子,對於巴金森病人患病後日常生活的活動與生活品質的相關研究尚缺乏著墨。因此本研究的目的為:以職能治療的觀點出發,探討巴金森病人日常生活的職能活動與生活品質之關係,主要想要了解(1)職能活動數量多寡與生活品質高低的相關性;(2)職能活動執行程度與生活品質高低的相關性。研究方法:本研究為「二次分析研究」(secondary research),所採用之原始樣本的個案共16位(男性9位,女性7位),平均年齡為64.88歲。首先會先將原始樣本的訪談內容轉錄成逐字稿,再由兩位登錄者從逐字稿中摘錄個案參與的活動,並將活動區分為日常活動、產能性活動、休閒活動中的任何一類,且加以判讀該活動的執行程度為何,及是否為體能性活動。而原始樣本中有評量巴金森病人之生活品質量表(PDQ-39),為本研究的生活品質參考依據。研究結果:經由皮爾森相關分析可得(1)職能活動數量多寡與生活品質高低之間沒有顯著相關;(2)職能活動執行程度與生活品質高低之間有呈現近高度相關。本研究進一步進行「質性分析」,發現更適切的活動分類方式,根據活動的意涵是否為「自我要求的原有生活」將活動分為兩類,經分析結果發現活動意涵為「自我要求的原有生活」者,其活動數量多寡及活動執行程度皆與生活品質之間呈現近高度相關。結論: 當個案能獨立從事越多具有意義及目的性的活動時,其生活品質也越好。而疾病所造成的活動執行程度改變,也與生活品質有高度相關。

    Background and Purpose:Parkinson’s Disease (PD) is a progressive chronic movement disorder. Health-related studies describing experiences of people with PD are more and more popular in recent years. There have been some studies investigating the factors of quality of life, but the research that explored the relationship between daily activities (occupations) and quality of life is limited. The purpose of this study was to probe into the relationship between occupations and quality of life in people with PD. This study was aimed to(1)analyze the relationship between the numbers of each type of occupations and the level of quality of life, and(2)investigate the relationship between the execution of occupations and the level of quality of life. Method:This study is a “secondary research.” There were 16 participants (9 males and 7 females) with PD selected from a previous study, with a mean age of 64.88 years old. First, the speech contents of interviews were transcribed. After that, two coders picked occupations from each transcript, and categorized each occupation into one type of activities. Activity types included activities of daily living, productive activities, leisure activities, and physical activities. The two coders also discriminated the level of execution for each occupation. The level of quality of life was measured by the Parkinson’s Disease Questionnaire(PDQ-39). Results: According to the correlational analyses, the numbers of occupations were not significantly correlated with the level of quality of life, but the execution of occupations was significantly correlated with quality of life. In order to have a better classification of occupations, a further step of “qualitative analysis” was conducted to figure out a new concept, which was named as “self-requested original life.” According to this concept, the two coders re-classified the occupations into two types, one was the occupations with the meaning of “self-requested original life,” and the other was the occupations without this meaning. We found that a higher number of the occupations with the meaning, and the better execution of the occupations with the meaning positively correlated with a higher level of quality of life. Conclusion: When subjects could carry out more tasks that are meaningful to them independently, they would have better quality of life. The performance of meaningful activities was correlated with the level of quality of life.

    中文摘要……………………………………………………………………………i 英文摘要……………………………………………………………………………ii 誌謝…………………………………………………………………………………iv 目錄…………………………………………………………………………………vi 表目錄………………………………………………………………………………viii 附錄目錄……………………………………………………………………………ix 第一章 緒論 第一節 研究之背景與動機…………………………………………………… 1 第二節 研究目的……………………………………………………………… 2 第三節 名詞定義與解釋……………………………………………………… 2 第四節 研究之合理與重要性………………………………………………… 4 第五節 研究假說……………………………………………………………… 7 第二章 文獻回顧 第一節 巴金森病……………………………………………………………… 9 第二節 生活品質………………………………………………………………12 第三節 職能活動………………………………………………………………16 第三章 研究方法 第一節 研究個案………………………………………………………………26 第二節 研究流程………………………………………………………………27 第三節 篩選及評估工具………………………………………………………30 第四節 研究假設………………………………………………………………32 第五節 資料處理………………………………………………………………33 第四章 資料分析與統計分析…………………………………………………36 第五章 結果……………………………………………………………………37 第六章 討論 第一節 職能活動之參與數量的多寡與PDQ -39總分之相關性 …………… 40 第二節 職能活動的整體執行程度與PDQ -39總分之相關性 ……………… 42 第三節 活動數量、活動執行程度與生活品質………………………………45 第四節 質性研究分析…………………………………………………………46 第五節 職能活動再分類………………………………………………………51 第六節 職能活動與職能治療…………………………………………………53 第七節 核心範疇活動與PDQ -39總分之相關性 …………………………… 55 第八節 核心範疇活動與職能治療……………………………………………57 第七章 結論 第一節 職能活動與生活品質 …………………………………………………59 第二節 研究限制 ………………………………………………………………60 第三節 臨床應用 ………………………………………………………………62 第四節 建議 ……………………………………………………………………62 中文參考文獻………………………………………………………………… 72 英文參考文獻………………………………………………………………… 73 表目錄 表一 人口學資料統計…………………………………………………………63 表二 登錄者A與登錄者B之登錄者間信度 ………………………………… 64 表三 職能活動之數量及百分比………………………………………………65 表四 職能活動之參與數量多寡與生活品質的相關性………………………66 表五 職能活動之執行程度與百分比…………………………………………67 表六 職能活動之整體執行程度與生活品質的相關性………………………68 表七 活動數量與活動執行程度的相關性……………………………………69 表八 核心範疇活動之活動數量與活動執行程度……………………………70 表九 核心範疇活動之數量及百分比…………………………………………71 附錄目錄 附錄A 職能活動耗能參照表 ………………………………………………… 83 附錄B 受試者同意書 ………………………………………………………… 86 附錄C PDQ-39 …………………………………………………………………89 附錄D 開放式訪談 …………………………………………………………… 94 附錄E 活動登錄表 …………………………………………………………… 95 附錄F 活動分類表 …………………………………………………………… 97 附錄G 逐字稿登錄與活動分類執行手冊 ……………………………………100 附錄H 質性研究舉例說明 ……………………………………………………102 附錄I 個案參與之職能活動統整 …………………………………………… 106

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