| 研究生: |
黃詩凌 Huang, Shih-Ling |
|---|---|
| 論文名稱: |
探討家屬經歷癌症病人留一口氣返家之經驗及需求 Exploring the Experiences and Needs of Impending Death Discharge among Cancer Patients’ Families |
| 指導教授: |
賴維淑
Lai, Wei-Shu |
| 學位類別: |
碩士 Master |
| 系所名稱: |
醫學院 - 護理學系 Department of Nursing |
| 論文出版年: | 2019 |
| 畢業學年度: | 107 |
| 語文別: | 中文 |
| 論文頁數: | 83 |
| 中文關鍵詞: | 留一口氣返家 、家屬 、經驗 、需求 、現象學 |
| 外文關鍵詞: | Impending death discharge, Families, Experiences, Needs, Phenomenology |
| 相關次數: | 點閱:128 下載:6 |
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背景與重要性:華人傳統文化中家中往生是善終的象徵,然而臨終病人因種種考量無法接受居家照護,故存在著留一口氣返家的出院模式,而過去相關研究較少針對此現象進行深入探討。
目的:本研究之目的為探討癌症病人留一口氣返家其家屬之經驗及需求。
方法:採用質性研究現象學,以立意取樣選取實際參與癌症病人留一口氣返家的照護或決策之喪親家屬。於喪親事件後兩個月至一年內,以半結構式訪談大綱進行深度訪談,並運用現象學Colaizzi資料分析法。
結果:本研究共收錄五位家屬的經歷,發現留一口氣返家之經驗包含五個主題,(一)探測生命的底線、(二)落葉盼歸根、(三)心願與現實的拉鋸、(四)計劃趕不上變化、(五)達願而無憾;而家屬於留一口氣返家的需求包含五個主題,(一)有備無患防範未然、(二)幽谷伴行、(三)醫療後盾不斷線、(四)葬儀接手免煩憂、(五)逝者安詳生者安。
結論/建議:本研究發現留一口氣返家的病人及家屬需要醫療團隊協助締結家與生命意義的連結、及早且共同擬定留一口氣返家的出院準備計劃,並於返家後持續提供醫療後盾及持續性的幽谷伴行。藉由了解家屬留一口氣返家之經驗與需求,有助於提供文化適切性的照護及協助,達成在宅善終、生死兩相安的真諦。
Dying at home is a symbol of good death in Taiwanese traditional culture. The existing literature regarding impending death discharge is limited. Phenomenological study was conducted to explore the experiences and needs of families in impending death discharge for cancer patients. In-depth semi-structured interviews were conducted with five families who had the experience of taking care or making the decision in impending death discharge for cancer patients within two months to one year after their relatives’ death. Data were analyzed through Colaizzi's method. Five main themes emerged from the experiences of impending death discharge, including (1) detecting the bottom line of life, (2) home is where our heart is, (3) struggling between wish and reality, (4) planning can’t match the variety, (5) not regret to fulfill the wish. The five main themes of families’ needs, including (1) preparation prevent unexpectedness, (2) being-with, (3) cohesive medical assistance, (4) connect to undertaker without a hitch, (5) the dead peaceful then the living peaceful. It is contributed to provide culturally congruent care for bereaved families to arrive the goal of helping patient good death at home.
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