背景：病情告知是減少無效醫療的第一步，將醫療正確的訊息傳遞出去，讓家屬瞭解病情變化的可能性，達成治療計劃的共識，可減少醫病間的認知落差，減輕家屬的心理壓力。過去研究多探討癌症病人或談論DNR(Do not resuscitation)倫理議題，顯少對於重症病情告知做相關研究。
目的：探索加護病房家屬對病情告知的經驗，了解病情告知現存的問題及家屬對於病情告知過程的需求。
方法：本研究以胡塞爾描述現象學觀點為基礎，以立意取樣方式於2016年4至12月間於南部某醫學中心加護病房，找出符合條件之參與者進行半結構式訪談。最後文本依據Giorgi(1985)所建構的現象學分析資料法進行分析歸納。
結果：加護病房家屬於病情告知過程的經驗中，發現了六種經驗：(一)接受消息，無法釐清、(二)尋求援助，幫助了解、(三)只有威嚇，沒有同理、(四)聽信醫生，接受事實、(五)救與不救，只是程序、(六)決策困難，面臨壓力。最後得到五個需求：(一)聆聽及解決心中疑問、(二)清楚及坦誠抉擇建議、(三)將心比心的同理告知、(四)希望多一點時間與空間、(五)護理角色的幫助。
結論：從加護病房家屬告知經驗中，重新檢視醫療溝通現存的問題，發現醫療的告知僅限於結果面，使得家屬無法理解病情變化的原因，過程中家屬存留疑問，決策訊息的告知也只限於家屬自己決定，使得家屬陷入決策兩難；本研究建議醫療能夠在專業角色之餘，體認家屬的認知不足與決策的困境，提供個別化的病情告知，討論治療計劃納入家屬的需求，給予最符合家屬與病人的建議。

A patient’s condition is unpredictable in the intensive care unit. It is very difficult for the doctor to tell the truth, and the family is often confused about a patient’s disease. The present study aims to explore the experience and the expectations of families in the intensive care unit. In-depth semi-structured interviews were conducted with five participants who have family members assessed with acute physiology and chronic health evaluation score(APACHE II) is more than(>=20) twenty at a medical center in southern Taiwan in 2017. Data was collected and analyzed using Giorgi’s (1985) empirical phenomenology analysis. Eleven themes were conducted, including six experience themes: (1) receive the information without understanding what it means, (2) ask for help to understand, (3) listen to a physician and accept the facts, (4) only intimidation, no empathy, (5) do or do not, it’s only a procedure, (6) decisions are difficult to make under pressure. And we have five necessary themes: (1) listen to and answer their questions, (2) clear and frank recommendations about choices, (3) treat others as you would want to be treated , (4) more time and space, (5)nurse’s assistance. Implications and recommendations for practice include sharing the results with the medical team and talking about the problems in communication for doctors, raising the value of the needs of families. Nurses can give empathy to families and provide the families with information about their questions.

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