烏腳病為台灣本土特有之阻塞性周邊血管疾病，其對人身體外觀、身體功能破壞及慢性疼痛遠勝過其他的慢性疾病，現有文獻皆與疾病相關，缺乏烏腳病人主體之病痛經驗。目的：本研究旨在瞭解烏腳病「人」主體的病痛經驗。方法：本研究採民族誌研究法，以台南縣北門鄉與學甲鎮為研究場域，有5位烏腳病人及20位當地民眾參與研究，運用深度訪談、參與觀察與蒐集相關史料文獻方法進行資料收集。結果：以情境分析法進行資料分析，歸納出三個層次的故事線及其核心敘事，分別為：（1）病痛症狀的意義：含烏腳病人感知身體症狀的「常觀」與「異觀」、症狀出現的「能指」與「所指」意涵；（2）罹病的解釋與反應：含烏腳病的社會隱喻對病人的影響、烏腳病人自述為命定不幸的受害者、截肢後社會生活的撤退、病痛的「有限性」與「無限性」；（3）烏腳病的社會烙印：社群面對地域烙印的反抗、井水做為歸因對地域的影響、烏腳病烙印對地區醫院的影響、對烏腳病的持續凝視。結論：本研究發現不僅烏腳病人承受身心靈與社會的各方壓力，相關學術研究與媒體報導也造成當地非烏腳病社群感知被社會烙印，研究結果建議對地區性疾病之探究宜走入當地社群，讓民眾有發聲機會，以建立在地性的社區護理知識，讓專業照護與人民、健康與土地有更緊密的連結。

The purpose of this study was to explore the lived experience of people who had blackfoot disease and those who lived in blackfoot disease hyperendemic areas. Using the ethnography methodology, we recruited five patients with blackfoot disease and twenty indwelling people lived in Beimen and Hsuehchia. Data were gathered from in-depth interviews, participant observations, published articles and newspapers . The contextualization analysis method was used for data analysis. The result generated three core narrative of illness experiences: (1) the meanings of illness symptom, (2) the perceptions and explanations of becoming ill, (3) the social stigma of blackfoot disease. The results showed that not only patients with blackfoot disease experienced biopsychosocial stress, but also those indwelling people who experienced social stigma. Based on the cultural perspective, the findings of this research can help us in developing culturally sensitive knowledge and in understanding the experience of people who lived in this blackfoot disease hyperendemic areas.

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