失智症家庭照顧者往往會因為失智病人的精神行為症狀、記憶問題、功能衰退等原因造成照顧負擔重、壓力大、對社交網絡產生負面影響。目前，在台灣大多數提供失智症家庭照顧者的支持服務多是面對面的方式，而以網站平台的方式提供支持服務可以降低時間、空間、地理位置的限制，且網路的匿名性鼓勵人們更自由參與。綜觀國內失智症與照顧者相關網站，多屬於提供資訊類型，較缺乏一站式、個人化的資源提供形式以及互動式的虛實融合服務功能。因此，基於服務需求與創新理念，本研究旨在探討失智症家庭照顧者的需求以及對網站平台提供社會支持的想法與建議，進而基於英國醫學研究委員會提出的MRC框架針對需求進行網站平台的初步設計。
根據MRC框架，本研究架構分成「探索需求與介入」和「網站的初步設計」兩個階段。探索需求與介入階段：透過半結構式訪談12位失智症家庭照顧者的需求，並將需求對應至資源探索與社會支持，以及了解照顧者對網站提供社會支持的想法與期待。網站的初步設計階段：共舉行兩次專家焦點團體討論網站的架構與功能、服務提供、網頁視覺設計等，由網頁設計師繪製視覺稿後，前端與後端工程師進行功能開發形成網站的原型。
研究發現，失智症家庭照顧者呈現四大情境主題：因照顧工作使得生活不便、面對失智症狀的照顧困擾、沒有管道與方法學習如何照顧、覺得照顧工作是自己應該做的，其需求包含「情感性的支持需求」：1.需要紓解壓力 2.情緒的自我調節能力；「實質性的支持需求」：1.諮詢醫護或社工專家 2.資源連結的管道 3.高可近性與可用性的長照服務 4.個案管理的雙向溝通 5.經濟補助；「訊息性的支持需求」：1.失智症照顧的共享經驗 2.失智症照顧與社福資源相關資訊 3.照顧者的課程講座；「社會網絡的支持需求」：1.家庭支援網絡的協助 2.同為失智症照顧者的網絡互動 3.朋友的互動。網站的初步設計以滿足四大社會支持需求為目標，分為三個層次，第一層為完全開放，提供失智症的疾病資訊、照顧知識、照顧與生活資源的資訊連結，並設置討論區；第二層為會員使用，照顧者註冊後可以設定朋友圈與使用個人化功能包括日記、日曆、照護筆記、動態貼文、私人訊息等互動式社群功能，並可以使用線上非同步諮詢服務；第三層為付費會員使用，提供每個個案一位照顧管理經紀人，照管經紀人可以提供線上即時諮詢服務、規劃與媒合照顧與生活資源，並制定照顧管理計畫及社會處方建議。
本研究根據探索失智症家庭照顧者需求的結果來進行多功能及互動性社會支持網站的初步設計，期以科技智能結合跨領域專業應用發展的優勢，跨越時空障礙以虛實融合提供服務及回應失智症家庭照顧者需求，並作為提供發展失智多元化創新服務之參考。

This study aims to explore the needs of family caregivers of PWD and bridging social support through the design of a website platform. Based on the Medical Research Council framework, the research went through two stages. Firstly, to explore the needs of family caregivers of PWD. Through the semi-structured interviews, we try to explore and understand their needs and map to social support. Then, the initial design of an online support platform was conducted. Experts are invited to join the focus group, including researchers, clinical staff, care managers and web designers. The results showed that caregivers of PWD have social support needs which could be divided to emotional support needs, tangible support needs, information support needs and social network support needs. In order to meet the needs of the caregivers, the website is designed to compose with three levels, the functions include the information of dementia, discussion forum, friends circle communication, dynamic posts, diary, calendar, care notes, and online interactive consultation services provided by link workers, planning and matching care and life resources, formulating care management plans and social prescription suggestions. Based on the results of exploring the needs of family caregivers of PWD, this study has designed a multi-functional and interactive social support website, which can provide reference for the development of diversified and innovative services for family caregivers of PWD.

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