簡易檢索 / 詳目顯示

研究生: 陸靚瀅
Lu, Liang-Ying
論文名稱: 使用結構方程分析台灣特殊需求兒童主要照顧者的健康決定因子
Health determinants of primary caregivers of children with special needs in Taiwan: A Structural Equation Modeling (SEM) Approach
指導教授: 余聰
Yu, Tsung
學位類別: 碩士
Master
系所名稱: 醫學院 - 公共衛生學系
Department of Public Health
論文出版年: 2022
畢業學年度: 110
語文別: 中文
論文頁數: 87
中文關鍵詞: 特殊需求兒童次級資料分析健康決定因子
外文關鍵詞: Special Needs,, children, Secondary Data Analysis, Health Determinants
相關次數: 點閱:121下載:25
分享至:
查詢本校圖書館目錄 查詢臺灣博碩士論文知識加值系統 勘誤回報
  • 本研究旨在探討台灣特殊需求兒童的主要照顧者之健康相關因子以及不同照顧者和障礙類別的結果差異。研究利用特殊需求長期追蹤資料庫(SNELS)中101學年度的國小家長資料進行次級分析。本研究採用描述性統計、變異數分析、結構方程進行分析。驗證性因子分析則是建立在Raina的理論架構基礎上結合台灣本土情況進行優化,使模型擬合度達標。
    主要研究結果如下:
    一、 主要照顧者不同,對照顧者健康的影響不同。相較於其他照顧者,母親單獨照顧,對健康的消極影響更大。
    二、 不同障礙類別對於照顧者的健康影響不同。其中多重障礙、自閉症和肢體障礙對健康的影響較為顯著。
    三、 主要照顧者不同,路徑不同,關注重點不同。在家庭中,父母更傾向於關注整個家庭的功能發揮,而父親則會關注兒童溝通功能和家庭功能的共同發揮。而母親則會更關注兒童的行為。
    四、 家庭功能是照顧者健康的主要預測因子。
    最後,本研究針對介入和後續研究提出建議。

    Raising a child with special needs may cause greater psychological and physical harm to caregivers. And the impact on health will vary by primary caregiver and disability type. The aim of this study was to explore the health determinants of primary caregivers of children with special needs in Taiwan and compare differences in models for different caregiver and different disability categories. The data was obtained from Special Needs Education Longitudinal Study(SNELS). Cases were defined who comes from elementary school in 2012. 2937 cases were found from this databases. Descriptive statistics, T-test, ANOVA, and SEM were used in this study. Confirmatory factor analysis(CFA) is based on Raina's theoretical framework. Different primary caregivers and disability categories have different effects on caregiver health.

    第壹章 緒論 1 第一節 研究背景 1 第二節 研究目的 5 第貳章 文獻探討 6 第一節 特殊需求的定義 6 第二節 特殊需求兒童的主要照顧者健康概況 8 第三節 主要照顧者的健康決定因子 11 第四節 不同主要照顧者之間的差異 16 第五節 不同障礙類別之間的差異 18 第六節 文獻小結 20 第參章 研究設計與實施 22 第一節 資料來源 22 第二節 研究對象 23 第三節 研究設計及研究架構 23 第四節 研究變項定義與測量 24 第五節 統計分析 27 第肆章 研究結果及討論 31 第一節 描述性統計結果 31 第二節 單因子變異數分析 33 第三節 整體模型適配度考驗 35 第四節 模型內各潛變量之效果 36 第五節 多重群組比較 38 第伍章 結論與未來建議 42 第一節 研究結論 42 第二節 研究優勢 45 第三節 研究限制 46 第四節 建議 48 第陸章 參考文獻 53 第柒章 附錄 64

    日本厚生勞動省. (2013). 平成23年生活のしづらさなどに関する調査 (全国在宅障害児・者等実態調査)結果の概要.
    行政院. (2007). 身心障礙者權益保障法.
    衛生福利部. (2021). 台灣身心障礙者權益保障白皮書.
    教育部.(2009).全國法規資料庫-特殊教育法-第一章第三條
    邱啟潤,許淑敏,吳瓊滿. (2002). 主要照顧者負荷、壓力與因應之國內研究文獻回顧. 醫護科技學刊, 4(4), 2002, 頁 273-290.doi:10.6563/TJHS.2002.4(4).1
    楊文山,劉千嘉.(2005) 我國家庭型態變遷趨勢—政策與法制調適之規劃.11-31
    郭家齊.(2014)高中職普通版身心障礙學生適應及相關因素之研 究-以特殊教育長期追蹤資料庫樣本資料分析
    林鈺梅. (2020). 國民受教育程度對就業率及收入之影響
    高淑芳、盧孳艷、葉淑惠、劉雪娥(1999).探討家庭功能、社會支持與社區殘病老人照顧者負荷之關係.護理研究, 7(2),172-181 。
    林佳臻, 杜明燦, 陳俊傑, 陳宣志, 顏啟華, & 李孟智. (2013). 台灣地區老人自覺健康狀況相關因子之探討. 台灣老年醫學暨老年學雜誌, 8(2), 75-89.
    NEH. (2020). Annual report on people with disabilities in America.
    UN. (2022). Convention on the rights of persons with disabilities and optional protocol.
    Raina, P., O'Donnell, M., Schwellnus, H., Rosenbaum, P., King, G., Brehaut, J., Russell, D., Swinton, M., King, S., Wong, M., Walter, S. D., & Wood, E.. (2004). Caregiving process and caregiver burden: Conceptual models to guide research and practice. BMC Pediatrics, 4(1). https://doi.org/10.1186/1471-2431-4-1
    Raina, P., O'Donnell, M., Rosenbaum, P., Brehaut, J., Walter, S. D., Russell, D., ... & Wood, E. (2005). The health and well-being of caregivers of children with cerebral palsy. Pediatrics, 115(6), e626-e636
    Olivius, G.. (2004). Parental economic stress: Evidence of an overlooked public health risk among Swedish families. European Journal of Public Health, 14(4), 354–360. https://doi.org/10.1093/eurpub/14.4.354
    Wilson, J. (2002). Defining 'special needs'. European Journal of Special Needs Education, 17(1), 61-66. (Wilson, 2002)
    Farrell, M. (2010). Debating special education. Routledge. Nation center for health statistic. (2010). National survey of children with special health care needs. Retrieved from https://www.cdc.gov/nchs/slaits/cshcn.htm
    Yamaoka, Y., Tamiya, N., Moriyama, Y., Sandoval Garrido, F. A., Sumazaki, R., & Noguchi, H. (2015). Mental health of parents as caregivers of children with disabilities: Based on Japanese nationwide survey. PLoS One, 10(12), e0145200.
    Abidin, R. R. (1983). Parenting Stress Index: Manual, Administration Booklet,[and] Research Update.
    Mewton, L., Kessler, RC, Slade, T., Hobbs, MJ, Brownhill, L., Birrell, L., ... & Andrews, G. (2016). The psychometric properties of the Kessler Psychological Distress Scale (K6) in a general population sample of adolescents. Psychological assessment , 28 (10), 1232.
    Hare, D. J., Pratt, C., Burton, M., Bromley, J., & Emerson, E. (2004). The health and social care needs of family carers supporting adults with autistic spectrum disorders. Autism, 8(4), 425-444.
    Ramachandruni, S., Handberg, E., & Sheps, D. S. (2004). Acute and chronic psychological stress in coronary disease. Current opinion in cardiology, 19(5), 494-499.
    Glasberg, B. A., Martins, M., & Harris, S. L. (2006). Stress and coping among family members of individuals with autism. Stress and coping in autism, 277-301.
    Achieve, L. A., Blumberg, S. J., Rice, C., Visser, S. N., & Boyle,C. (2007). The relationship between autism and parenting stress. Pediatrics, 119(Supplement 1), S114-S121.
    Ferro, M. A., & Speechley, K. N. (2009). Depressive symptoms among mothers of children with epilepsy: a review of prevalence, associated factors, and impact on children. Epilepsia, 50(11), 2344-2354.
    Weiss, M. J. (2002). Hardiness and social support as predictors of stress in mothers of typical children, children with autism, and children with mental retardation. Autism, 6(1), 115-130.
    Choe, D. E., Olson, S. L., & Sameroff, A. J. (2013). The interplay of externalizing problems and physical and inductive discipline during childhood. Developmental psychology, 49(11), 2029.
    Mash, E. J., & Johnston, C. (1990). Determinants of parenting stress: Illustrations from families of hyperactive children and families of physically abused children. Journal of clinical child psychology, 19(4), 313-328.
    Haack, L. M., Villodas, M. T., McBurnett, K., Hinshaw, S., &
    Pfiffner, L. J. (2016). Parenting mediates symptoms and impairment in children with ADHD-inattentive type. Journal of Clinical Child & Adolescent Psychology, 45(2), 155-166.
    Mackler, J. S., Kelleher, R. T., Shanahan, L., Calkins, S. D., Keane, S. P., & O'Brien, M. (2015). Parenting stress, parental reactions, and externalizing behavior from ages 4 to 10. Journal of Marriage and Family, 77(2), 388-406.
    Hastings, R. P. (2003). Child behaviour problems and partner mental health as correlates of stress in mothers and fathers of children with autism. Journal of intellectual disability research, 47(4 ‐5), 231-237.
    Morris, L. A. (2012). Testing respite effect of work on stress
    among mothers of children with special needs. Journal of Family and Economic Issues, 33(1), 24-40.
    Mailick Seltzer, M., Greenberg, J. S., Floyd, F. J., Pettee, Y., & Hong, J. (2001). Life course impacts of parenting a child with a disability. American journal on mental retardation, 106(3), 265-286.
    Florian, V., & Findler, L. (2001). Mental health and marital adaptation among mothers of children with cerebral palsy. American journal of orthopsychiatry, 71(3), 358-367.
    Uskun, E., & Gundogar, D. (2010). The levels of stress, depression and anxiety of parents of disabled children in Turkey. Disability and Rehabilitation, 32(23), 1917-1927.
    Emerson, E., & Llewellyn, G. (2008). The mental health of Australian mothers and fathers of young children at risk of disability. Australian and New Zealand journal of public health, 32(1), 53-59.
    Sanders, J. L., & Morgan, S. B. (1997). Family stress and adjustment as perceived by parents of children with autism or Down syndrome: Implications for intervention. Child & Family Behavior Therapy, 19(4), 15-32.
    Montes, G., & Halterman, J. S. (2008). Association of childhood autism spectrum disorders and loss of family income. Pediatrics, 121(4), e821-e826.
    Gottlieb, B. H. (1978). The development and application of a classification scheme of informal helping behaviours. Canadian, Journal of Behavioural Science/Revue canadienne des sciences du comportement, 10(2), 105.
    Blossom G.Dharmaraj & Vicky L.Ng (2021). Psychosocial outcomes after pediatric liver transplantation. Pediatric Liver Transplantation, 2021, P420-430
    Shiba, K., Kondo, N., & Kondo, K. (2016). Informal and formal social support and caregiver burden: the AGES caregiver survey. Journal of epidemiology, 26(12), 622-628.
    Huang, Y. P., Chen, S. L., & Tsai, S. W. (2012). Father’s
    experiences of involvement in the daily care of their child with developmental disability in a Chinese context. Journal of Clinical Nursing, 21(21-22), 3287-3296.
    Emerson, E., & Llewellyn, G. (2008). The mental health of
    Australian mothers and fathers of young children at risk of disability. Australian and New Zealand journal of public health, 32(1), 53-59.
    Uskun, E., & Gundogar, D. (2010). The levels of stress, depression and anxiety of parents of disabled children in Turkey.
    Disability and Rehabilitation, 32(23), 1917-1927.
    Oelofsen, N., & Richardson, P. (2006). Sense of coherence and parenting stress in mothers and fathers of preschool children with developmental disability. Journal of Intellectual and developmental Disability, 31(1), 1-12.
    Dabrowska, A., & Pisula, E. (2010). Parenting stress and coping styles in mothers and fathers of pre‐school children with autism and Down syndrome. Journal of intellectual disability research, 54(3), 266-280.
    Higgins, D. J., Bailey, S. R., & Pearce, J. C. (2005). Factors associated with functioning style and coping strategies of families with a child with an autism spectrum disorder. Autism, 9(2), 125-137.
    Gau, S. S. F., Chou, M. C., Chiang, H. L., Lee, J. C., Wong, C. C., Chou, W. J., & Wu, Y. Y. (2012). Parental adjustment, marital relationship, and family function in families of children with autism. Research in Autism spectrum disorders, 6(1), 263-270.
    Hastings, R. P., & Brown, T. (2002). Behavior problems of
    children with autism, parental self-efficacy, and mental
    health. American journal on mental retardation, 107(3), 222-232.
    Miranda, A., Tárraga, R., Fernández, M. I., Colomer, C., &
    Pastor, G. (2015). Parenting stress in families of children with autism spectrum disorder and ADHD. Exceptional Children, 82(1), 81-95.
    Yura, M. T., & Huber, C. H. (1983). Raising the child with special needs. Individual psychology, 39(4), 367.The 2006 Participation and Activity Limitation Survey. http://www.statscan.gc.ca/. Accessed December 9, 2013.
    Baker, K. L., & Robertson, N. (2008). Coping with caring for someone with dementia: Reviewing the literature about men. Aging and Mental Health, 12(4), 413-422.
    Mott, J., Schmidt, B., & MacWilliams, B. (2019). Male Caregivers: Shifting roles among family caregivers. Clinical
    journal of oncology nursing, 23(1).
    Pretorius, C., Walker, S., & Heyns, P. M. (2009). Sense of coherence amongst male caregivers in dementia: A South African perspective. Dementia, 8(1), 79-94.
    Accius, J. (2017). Breaking stereotypes: Spotlight on male family caregivers.
    World Health Organization. (2001). International Classification of Functioning, Disability and Health (ICF). Geneva: Author.
    World Health Organization. (2007). International Classification of Functioning, Disabilirt and Health for Children and Youth(ICF-CY). Genea: Author.
    Shobana, M., & Saravanan, C. (2014). Comparative study on attitudes and psychological problems of mothers towards their children with developmental disability. East Asian Archives of Psychiatry, 24(1), 16-22.
    Isa, S. N. I. (2012). The Impact of Disabled Children on Parent Health Related Quality of Live and Family Functioning in Kelantan and Its Associated Factors (Doctoral dissertation, Universiti Sains Malaysia).
    Walsh, C. E., Mulder, E., & Tudor, M. E. (2013). Predictors of parent stress in a sample of children with ASD: Pain, problem behavior, and parental coping. Research in Autism Spectrum Disorders, 7(2), 256-264.
    Benson, P.R., 2010. Coping, distress, and well-being in mothers of children with autism. Research in Autism Spectrum Disorders 4, 217-228

    下載圖示 校內:立即公開
    校外:立即公開
    QR CODE