背景： 照顧患有腦性麻痺（Cerebral Palsy, CP）的兒童可能對照顧者造成顯著的身體、情緒與社會壓力。相較於照顧未患有腦性麻痺的兒童，照顧腦性麻痺兒童的照顧者可能承受更高程度的照顧負擔，並可能導致其生活品質下降。
目的： 本研究旨在比較史瓦帝尼（Eswatini）照顧患有與未患有腦性麻痺兒童之照顧者的照顧者負擔、生活品質及其相關影響因素。
方法： 本研究採橫斷式比較研究設計，研究對象為於史瓦帝尼四所最大的區域公立轉診醫院之復健科與門診部就診兒童的主要照顧者，包括照顧患有腦性麻痺及未患有腦性麻痺之兒童的照顧者。採便利取樣方式，共招募180名照顧者（照顧腦性麻痺兒童者90名，照顧未患有腦性麻痺兒童者90名）。資料透過面對面訪談方式，由研究人員以結構式問卷進行收集。照顧者負擔與生活品質分別使用Zarit照顧者負擔量表（Zarit Burden Interview, ZBI）與世界衛生組織生活品質量表簡表（World Health Organization Quality of Life-BREF, WHOQOL-BREF）進行測量。資料以SPSS第27版進行統計分析，並遵循人體研究倫理相關規範。
結果： 研究結果顯示，多數照顧者為女性（97.2%）且處於失業狀態。照顧腦性麻痺兒童的照顧者，其照顧者負擔顯著高於照顧未患有腦性麻痺兒童的照顧者（M = 57.03，SD = 15.45；M = 28.73，SD = 14.38），且其生活品質顯著較低（M = 76.47，SD = 13.42；M = 91.24，SD = 13.53）（p < .001）。照顧者負擔與生活品質之間呈現強烈負相關（r = −0.76，p < .001）。在照顧腦性麻痺兒童的照顧者中，照顧者負擔與就業狀況、照顧時數及兒童失能嚴重程度相關；生活品質則與教育程度、收入、居住地、照顧時數及失能嚴重程度相關。相較之下，在照顧未患有腦性麻痺兒童的照顧者中，照顧時數與兒童年齡與照顧者負擔相關，但未發現任何因素與其生活品質具有顯著關聯。
結論： 照顧腦性麻痺兒童的照顧者相較於照顧未患有腦性麻痺兒童的照顧者，承受顯著更高的照顧者負擔，且其生活品質較低。研究結果顯示，有必要在史瓦帝尼提供具針對性的財務、心理社會及社區支持介入措施，以改善照顧者的整體福祉。

Background: Caring for children with cerebral palsy (CP) can place substantial physical, emotional, and social demands on caregivers, potentially increasing caregiver burden and reducing quality of life more than caring for children without cerebral palsy.
Aim: To compare caregiver burden, quality of life, and associated factors among caregivers of children with and without cerebral palsy in Eswatini.
Methods: A cross-sectional comparative study was conducted among primary caregivers of children with and without CP attending physiotherapy and outpatient departments at the four largest regional public referral hospitals in Eswatini. Using convenience sampling, 180 caregivers were recruited (90 caring for children with CP and 90 caring for children without CP). Data were collected through face-to-face interviewer-administered questionnaires. Caregiver burden and quality of life were measured using the Zarit Burden Interview (ZBI) and the World Health Organization Quality of Life-BREF (WHOQOL-BREF). Data were analyzed using SPSS version 27, and ethical guidelines for human participant research were followed.
Results: Most caregivers were female (97.2%) and unemployed. Caregivers of children with CP reported significantly higher caregiver burden (M = 57.03, SD = 15.45) than caregivers of children without CP (M = 28.73, SD = 14.38), and significantly poorer quality of life (M = 76.47, SD = 13.42 vs M = 91.24, SD = 13.53) (p < .001). Caregiver burden was strongly negatively correlated with quality of life (r = −0.76, p < .001). Among caregivers of children with CP, burden was associated with employment status, caregiving hours, and disability severity, while quality of life was associated with education, income, residence, caregiving hours, and disability severity. In contrast, caregiving hours and the child’s age were associated with burden among caregivers of children without CP, with no significant factors influencing their quality of life.
Conclusion: Caregivers of children with CP experience significantly greater burden and poorer quality of life than caregivers of children without CP. Targeted financial, psychosocial, and community-based support interventions are needed to improve caregiver well-being in Eswatini.

Abeasi, D. A., Nkosi, N. G., Badoe, E., & Adjeman, J. (2024). Caring by default: Experiences of caregivers of children with developmental disabilities in Ghana mirrored in the context of the stress process model. BMC Nursing, 23(1), 482. https://doi.org/10.1186/s12912-024-02142-1
Abou Taleb, M. Y. M., Sayed, M., El Ghamry, R., Hashem, R., El Shamy, H., & Mansour, O. (2025). Burden, self-efficacy, and quality of life among caregivers of cerebral palsy children at the National Institute of Neuromotor System. Middle East Current Psychiatry, 32(1), 85. https://doi.org/10.1186/s43045-025-00577-z
Adaoga, O., Nvene, C., Nwankwo, N. I., Ozorgwu, R., & Okoli, P. (2019). Evaluating quality of life among parents of children living with cerebral palsy in Enugu State, Nigeria. Journal of Social Sciences, 4(2), 262-272. https://esutjss.com/index.php/ESUTJSS/article/view/17
Adegoke, B., Adenuga, O. O., Olaleye, O. A., & Akosile, C. O. (2014). Quality of life of mothers of children with cerebral palsy and their age-matched controls [Article]. African Journal of Neurological Sciences, 33(1), 71-78. https://www.embase.com/search/results?subaction=viewrecord&id=L600036298&from=export
Aduful, A. K., Boamah-Mensah, F., Nyarko, M. Y., Neizer, M. L., Brew, Y. N., Williams, L. A., Calys-Tagoe, B. N. L., Ackun, H. K. M., & Tette, E. M. A. (2023). Family needs assessment of patients with cerebral palsy attending two hospitals in Accra, Ghana. Children, 10(8), 1313. https://doi.org/10.3390/children10081313
Adugna, M. B., Nabbouh, F., Shehata, S., & Ghahari, S. (2020). Barriers and facilitators to healthcare access for children with disabilities in low and middle-income sub-Saharan African countries: A scoping review. BMC Health Services Research, 20(1), 15. https://doi.org/10.1186/s12913-019-4822-6
Agyemang-Duah, W., & Rosenberg, M. W. (2024). Geographical location as a determinant of caregiver burden: A rural-urban analysis of the informal caregiving, health, and healthcare survey in Ghana. BMC Primary Care, 25(1), 317. https://doi.org/10.1186/s12875-024-02562-7
Ahmadizadeh, Z., Rassafiani, M., Amozadeh Khalili, M., & Mirmohammadkhani, M. (2015). Factors associated with quality of life in mothers of children with cerebral palsy in Iran. Hong Kong Journal of Occupational Therapy, 25, 15-22. https://doi.org/10.1016/j.hkjot.2015.02.002
Al-Gamal, E., & Long, T. (2013). Psychological distress and perceived support among Jordanian parents living with a child with cerebral palsy: A cross-sectional study. Scandinavian Journal of Caring Sciences, 27(3), 624-631. https://doi.org/10.1111/j.1471-6712.2012.01071.x
Albayrak, I., Biber, A., Çalışkan, A., & Levendoglu, F. (2019). Assessment of pain, care burden, depression level, sleep quality, fatigue and quality of life in the mothers of children with cerebral palsy. Journal of Child Health Care, 23(3), 483-494. https://doi.org/10.1177/1367493519864751
Alghamdi, M. S., & Awali, A. (2024). Predictors of health-related quality of life for caregivers of children with developmental disabilities in Saudi Arabia: An observational study. Medicine, 103(32), e39206. https://doi.org/10.1097/md.0000000000039206
Alhumaidi, K. A., Alshwameen, M. O., Alsayed, M. S., Alqoaer, D. K., Albalawi, R. S., Alanzi, S. M., Alharthe, A. F., & Abdulaziz Subayyil Alanazi, H. (2023). Quality of life of primary caregivers of children with cerebral palsy from a family perspective. Cureus, 15(11), e49378. https://doi.org/10.7759/cureus.49378
Almarabheh, A., Salah, A. B., Alghamdi, M., Al Saleh, A., Elbarbary, A., Al Qashar, A., Alserdieh, F., Alahmed, F., Alhaddar, H., Alsada, L., Yosri, M., Omran, M., Khudhair, M., Salih, M., Fuad, N., & Chlif, S. (2023). Validity and reliability of the WHOQOL-BREF in the measurement of the quality of life of sickle disease patients in Bahrain. Frontiers in Psychology, 14, 01-08. https://doi.org/10.3389/fpsyg.2023.1219576
Alqahtani, A., Sahely, A., Aldersey, H. M., Finlayson, M., Macdonald, D., & Fakolade, A. (2025). Understanding the parental caregiving of children with cerebral palsy in Saudi Arabia: Discovering the untold story. International Journal of Environmental Research and Public Health, 22(6), 946. https://doi.org/10.3390/ijerph22060946
Alrahili, N. (2023). Burnout and anxiety among parents of children with neurodevelopmental disorders: A cross-sectional study in Saudi Arabia. Middle East Current Psychiatry, 30(1), 58. https://doi.org/10.1186/s43045-023-00331-3
Alshadfan, L., Deameh, M., Alhyary, A., Da’meh, M., El-Areidi, K., Sharqi, M., Alkayed, A., Da’meh, K., Alhaj Ali, O., Alkhdour, G., Abu-Shai’rah, R., Akash, B., Alfaouri, M., & Abualhaj, S. (2025). Understanding the caregiver experience: A cross-sectional study of caregiver burden among those caring for chronically ill children in Jordan. BMJ Paediatrics Open, 9(1), e003610. https://doi.org/10.1136/bmjpo-2025-003610
Alwhaibi, R. M., Zaidi, U., Alzeiby, I., & Alhusaini, A. (2020). Quality of life and socioeconomic status: A comparative study among mothers of children with and without disabilities in Saudi Arabia. Child Care in Practice, 26(1), 62-80. https://doi.org/10.1080/13575279.2018.1512951
apos, Connor, D. B., Thayer, J. F., & Vedhara, K. (2021). Stress and health: A review of psychobiological processes. Annual Review of Psychology, 72, 663-688. https://doi.org/10.1146/annurev-psych-062520-122331
Arasu, S., & Shanbhag, D. (2021). Quality of life and burden of caregiving among the primary caregivers of children with disability in rural Karnataka. Journal of Family Medicine and Primary Care, 10(8), 2804-2809. https://doi.org/10.4103/jfmpc.jfmpc_1911_20
Atar, E., Dilekçi, E., Özsoy Ünübol, T., Gündüz, N., Atar, M., & Aşkın, A. (2022). Caregiver burden in cerebral palsy: Validity and reliability of the Turkish version of caregiver difficulties scale. Child: Care, Health and Development 48(3), 465-473. https://doi.org/10.1111/cch.12947
Bamber, M. D., Mahony, H., & Spratling, R. (2023). Mothers of children with special health care needs: Exploring caregiver burden, quality of life, and resiliency. Journal of Pediatric Health Care, 37(6), 643-651. https://doi.org/10.1016/j.pedhc.2023.06.003
Barandon, S., Castel, L., Galera, C., van der Waerden, J., & Sutter-Dallay, A. L. (2023). Women's quality of life and mental health in the first year after birth: Associated factors and effects of antenatal preventive measures among mothers in the ELFE cohort. Journal of Affective Disorders, 321, 16-27. https://doi.org/10.1016/j.jad.2022.10.012
Barros, A. L. O., de Gutierrez, G. M., Barros, A. O., & Santos, M. T. B. R. (2019). Quality of life and burden of caregivers of children and adolescents with disabilities. Special Care in Dentistry, 39(4), 380-388. https://doi.org/10.1111/scd.12400
Bello, U., Chutiyami, M., & Salihu, D. (2020). Predictors of quality of life among informal caregivers of children with cerebral palsy: A cross-sectional survey in Northeastern Nigeria. African Journal of Medicine and Medical Sciences, 49, 263-270. https://doi.org/http://ojshostng.com/index.php/ajmms/article/view/682/360
Ben-Zur, H. (2020). Transactional model of stress and coping. In V. Zeigler-Hill & T. K. Shackelford (Eds.), Encyclopedia of Personality and Individual Differences (pp. 5561-5564). Springer International Publishing. https://doi.org/10.1007/978-3-319-24612-3_2128
Beydoun, J., Nasrallah, L., Sabrah, T., & Caboral-Stevens, M. (2019). Towards a definition of caregiver fatigue: A concept analysis. Advances in Nursing Science, 42(4), 297-306. https://doi.org/10.1097/ans.0000000000000262
Bo, H.-X., Yang, Y., Zhang, D.-Y., Zhang, M., Wang, P.-H., Liu, X.-H., Ge, L.-N., Lin, W.-X., Xu, Y., Zhang, Y.-L., Li, F.-J., Xu, X.-J., Wu, H.-H., Jackson, T., Ungvari, G. S., Cheung, T., & Xiang, Y.-T. (2021). The prevalence of depression and its association with quality of life among pregnant and postnatal women in China: A multicenter study [Original Research]. Frontiers in Psychiatry, 12, 1-7. https://doi.org/10.3389/fpsyt.2021.656560
Boluarte-Carbajal, A., Paredes-Angeles, R., & Tafur-Mendoza, A. A. (2022). Psychometric properties of the Zarit Burden Interview in informal caregivers of persons with intellectual disabilities [Original Research]. Frontiers in Psychology, 13. https://doi.org/10.3389/fpsyg.2022.792805
Boztepe, H., Cinar, S., Ay, A., Kerimoglu Yildiz, G., & Kilic, C. (2019). Predictors of caregiver burden in mothers of children with leukemia and cerebral palsy. Journal of Psychosocial Oncology, 37(1), 69-78. https://doi.org/10.1080/07347332.2018.1489441
Breiner, H., Ford, M., Gadsden, V. L., National Academies of Sciences, E., & Medicine. (2016). Parenting knowledge, attitudes, and practices. In Parenting matters: Supporting parents of children ages 0-8. National Academies Press (US). https://www.ncbi.nlm.nih.gov/books/NBK402020/
Britannica, T. (2020). Eswatini summary. In Editors of Encyclopedia. Eswatini: Encyclopedia Britannica.
Bulekbayeva, S., Daribayev, Z., Ospanova, S., & Vento, S. (2017). Cerebral palsy: A multidisciplinary, integrated approach is essential. The Lancet Global Health, 5(4), e401. https://doi.org/10.1016/S2214-109X(17)30082-7
Cantero, M. J. P., Medinilla, E. E. M., Martínez, A. C., & Gutiérrez, S. G. (2021). Comprehensive approach to children with cerebral palsy. Anales de Pediatría 95(4), 276.e271-276.e211. https://doi.org/10.1016/j.anpede.2021.07.002
Carona, C., Pereira, M., Moreira, H., Silva, N., & Canavarro, M. C. (2013). The Disability paradox revisited: Quality of life and family caregiving in pediatric cerebral palsy. Journal of Child and Family Studies, 22(7), 971-986. https://doi.org/10.1007/s10826-012-9659-0
Carona, C., Silva, N., Crespo, C., & Canavarro, M. C. (2014). Caregiving burden and parent-child quality of life outcomes in neurodevelopmental conditions: The mediating role of behavioral disengagement. Journal of Clinical Psychology in Medical Settings, 21(4), 320-328. https://doi.org/10.1007/s10880-014-9412-5
Carroll, A., Chan, D., Thorpe, D., Levin, I., & Bagatell, N. (2021). A life course perspective on growing older with cerebral palsy. Qualitative Health Research, 31(4), 654-664. https://doi.org/10.1177/1049732320971247
Chatmon, R., & Murty, K. (2023). Typically developing children and their impact on parental caregivers’ quality of life: Literature review. Journal of Public Health Issues and Practices, 7(1), 213. https://doi.org/10.33790/jphip1100213
Christodoulou, P., Christopoulou, F., Stergiou, A., & Christopoulos, K. (2020). Quality of life of parents of children with disabilities. European Journal of Education and Pedagogy, 1(1), 1-6. https://doi.org/10.24018/ejedu.2020.1.1.1
Chung-Park, M. S. (2012). Knowledge, opinions, and practices of infant sleep position among parents. Military Medicine, 177(2), 235-239. https://doi.org/10.7205/MILMED-D-11-00323
Çolak, B., & Kahriman, İ. (2023). Evaluation of family burden and quality of life of parents with children with disability. The American Journal of Family Therapy, 51(2), 113-133. https://doi.org/10.1080/01926187.2021.1941421
Dambi, J. M., Jelsma, J., & Mlambo, T. (2015). Caring for a child with cerebral palsy: The experience of Zimbabwean mothers. African Journal of Disability, 4(1), 168. https://doi.org/10.4102/ajod.v4i1.168
Davis, A. O., Olagbegi, O. M., Orekoya, K., Adekunle, M., Oyewole, O. O., Adepoju, M., & Soetan, O. (2021). Burden and quality of life of informal caregivers of children with cerebral palsy. Revista da Rede de Enfermagem do Nordeste., 22(1), 1-9. https://doi.org/10.15253/2175-6783.20212261752
Davis, F. J., Clark, M. J., & Johnston, L. M. (2014). Getting ready for high school: Quality of life of adolescents with cerebral palsy and experiences and concerns of their families [Conference Abstract]. Developmental Medicine and Child Neurology, 56, 24. https://doi.org/10.1111/dmcn.12368
De Moura-Souza, J., Camara-Machado, F., Pereira-Antunes, P., Cardoso-Santos, A., Centenaro-Levandowski, D., & Alves-de Oliveira Junior, A. (2018). Quality of life and burden in caregivers of children with cerebral palsy. Revista Brasileira em Promoção da Saúde, 31(3), 1-10. https://doi.org/10.5020/18061230.2018.7748
Demirbağ, B. C., Özkan, Ç. G., Bayrak, B., & Kurt, Y. (2017). Caregiver burden and responsibilities for nurses to reduce burnout. Caregiving and Home Care 17-42. https://doi.org/10.5772/intechopen.68761
Dhemba, J., & Nhapi, T. G. (2023). Social work with older persons: The case of Eswatini and Zimbabwe. Relational Social Work, 7(1). https://rsw.erickson.international/archivio/vol-n-6/social-work-with-older-persons-the-case-of-eswatini-and-zimbabwe/ accessed December 12, 2025
Dlamini, M. D., &, & Chang, Y.-J. (2025). Caregiver burden in caring for children with cerebral palsy: A concept analysis. International Journal of Health, Medicine and Nursing Practice, 7(1), 1-23. https://doi.org/10.47941/ijhmnp.2465
Dlamini, M. D., Chang, Y. J., & Nguyen, T. T. B. (2023). Caregivers' experiences of having a child with cerebral palsy. A meta-synthesis. Journal of Pediatric Nursing, 73, 157-168. https://doi.org/10.1016/j.pedn.2023.08.026
Domínguez-Vergara, J., Santa-Cruz-Espinoza, H., & Chávez-Ventura, G. (2023). Zarit Caregiver Burden Interview: Psychometric properties in family caregivers of people with intellectual disabilities. European Journal of Investigation in Health, Psychology and Education, 13(2), 391-402. https://doi.org/10.3390/ejihpe13020029
Donald, K., Katangwe, T. J., Springer, P. E., Solomons, R. S., Toorn, R. V., Steel, S., & Kruger, M. (2020). A South African cerebral palsy registry is needed. South African Medical Journal, 110(5), 353-354. https://doi.org/doi:10.7196/SAMJ.2020.v110i5.14504
Donald, K. A., Kakooza, A. M., Wammanda, R. D., Mallewa, M., Samia, P., Babakir, H., Bearden, D., Majnemer, A., Fehlings, D., Shevell, M., Chugani, H., & Wilmshurst, J. M. (2015). Pediatric cerebral palsy in Africa: Where are we? Journal of Child Neurology, 30(8), 963-971. https://doi.org/10.1177/0883073814549245
Duxbury, L., & Higgins, C. (2017). Something's got to give: Balancing work, childcare and eldercare. University of Toronto Press.
Elangkovan, I. T., & Shorey, S. (2020). Experiences and needs of parents caring for children with cerebral palsy: A systematic review. Journal of Developmental and Behavioral Pediatrics 41(9), 730-739. https://doi.org/10.1097/DBP.0000000000000880
Eswatini, C. o. (2005). Retrieved from available at: http://www.gov.sz/images/stories/Constitution%20of%20%20SD-2005A001.pdf
Farajzadeh, A., Maroufizadeh, S., & Amini, M. (2020). Factors associated with quality of life among mothers of children with cerebral palsy. International Journal of Nursing Practice, 26(3), e12811. https://doi.org/10.1111/ijn.12811
Fatudimu, M. B., Hamzat, T. K., & Akinyinka, O. O. (2013). Comparative quality of life of Nigerian caregivers of children with cerebral palsy. International Journal of Therapy and Rehabilitation, 20(3), 131-135. https://doi.org/10.12968/ijtr.2013.20.3.131
Flanagan, J. C. (1978). A research approach to improving our quality of life. American Psychologist, 33(2), 138-147. https://doi.org/10.1037/0003-066X.33.2.138
Fong, V. C., McLaughlin, J., & Schneider, M. (2023). “We are exhausted, worn out, and broken”: Understanding the impact of service satisfaction on caregiver well-being. Autism Research, 16(11), 2198-2207. https://doi.org/10.1002/aur.3024
Frosch, C. A., Schoppe-Sullivan, S. J., & O'Banion, D. D. (2021). Parenting and child development: A relational health perspective. American Journal of Lifestyle Medicine, 15(1), 45-59. https://doi.org/10.1177/1559827619849028
Garip, Y., Ozel, S., Tuncer, O. B., Kilinc, G., Seckin, F., & Arasil, T. (2017). Fatigue in the mothers of children with cerebral palsy. Disability and Rehabilitation, 39(8), 757-762. https://doi.org/10.3109/09638288.2016.1161837
Gbonjubola, Y. T., Fatudimu, M. B., & Hamzat, T. K. (2023). Association of motor performance of children with cerebral palsy and burnout level of their informal caregivers in an African community. Journal of Pediatric Rehabilitation Medicine 16(1), 203-209. https://doi.org/10.3233/PRM-200675
Gincota Bufteac, E., Andersen, G. L., Torstein, V., & Jahnsen, R. (2018). Cerebral palsy in Moldova: Subtypes, severity and associated impairments. BMC Pediatrics, 18(1), 332. https://doi.org/10.1186/s12887-018-1305-6
Given, C. W., Given, B., Stommel, M., Collins, C., King, S., & Franklin, S. (1992). The caregiver reaction assessment for caregivers to persons with chronic physical and mental impairments. Research in Nursing & Health, 15(4), 271-283. https://doi.org/10.1002/nur.4770150406
Glinac, A., Matović, L., Delalić, A., & Mešalić, L. (2017). Quality of life in mothers of children with cerebral palsy. Acta clinica Croatica, 56(2), 299-307. https://doi.org/10.20471/acc.2017.56.02.14
Gottfried, A. W. (2013). Home environment and early cognitive development: Longitudinal research. Academic Press.
Graessel, E., Berth, H., Lichte, T., & Grau, H. (2014). Subjective caregiver burden: Validity of the 10-item short version of the Burden Scale for Family Caregivers BSFC-s. BMC Geriatrics, 14(1), 23. https://doi.org/10.1186/1471-2318-14-23
Green, M. M., & Gaebler-Spira, D. (2019). Cerebral palsy. Journal of Pediatric Rehabilitation Medicine 12(2), 113-114. https://doi.org/10.3233/prm-190008
Haddada, I., El Arem, S., Salah, A. H., Fredj, M. B., Fekih, A., Sayhi, T., Hedi Zaafrane, M., Sghir, M., & Kessomtini, W. (2025). The well-being of mothers caregiving for children with cerebral palsy: A Tunisian cross-sectional study. Pan African Medical Journal, 51, 33. https://doi.org/10.11604/pamj.2025.51.33.45979
Hermanns, M., & Mastel-Smith, B. (2012). Caregiving: A qualitative concept analysis. Qualitative Report, 17(75), 1-18. https://files.eric.ed.gov/fulltext/EJ989821.pdf accessed 16/12/2023
Hewawitharana, B. D. R., Wijesinghe, C. J., De Silva, A., Phillips, J. P., & Hewawitharana, G. P. (2023). Disability and caregiver burden: Unique challenges in a developing country [Article in Press]. Journal of Pediatric Rehabilitation Medicine 16(3), 483-491. https://doi.org/10.3233/PRM-220070
Huo, M., & Kim, K. (2023). Lasting impact of relationships on caregiving difficulties, burden, and rewards. Journal of Social and Personal Relationships, 40(1), 288-310. https://doi.org/10.1177/02654075221118095
Ismail, A., Sk Abd Razak, R., Suddin, L. S., Mahmud, A., Kamaralzaman, S., & Yusri, G. (2022). The economic burden and determinant factors of parents/caregivers of children with cerebral palsy in Malaysia: A mixed methods study. International Journal of Environmental Research and Public Health, 19(1). https://doi.org/10.3390/ijerph19010475
Javalkar, K., Rak, E., Phillips, A., Haberman, C. J., Ferris, M., & van Tilburg, M. A. L. (2017). Predictors of caregiver burden among mothers of children with chronic conditions. Children, 4. https://doi.org/10.3390/children4050039
Jeong, J., Franchett, E. E., Ramos de Oliveira, C. V., Rehmani, K., & Yousafzai, A. K. (2021). Parenting interventions to promote early child development in the first three years of life: A global systematic review and meta-analysis. PLoS Medicine, 18(5), e1003602. https://doi.org/10.1371/journal.pmed.1003602
Jonsson, U., Eek, M. N., Sunnerhagen, K. S., & Himmelmann, K. (2019). Cerebral palsy prevalence, subtypes, and associated impairments: A population-based comparison study of adults and children. Developmental Medicine & Child Neurology, 61(10), 1162-1167. https://doi.org/10.1111/dmcn.14229
Jozefiak, T., Larsson, B., Wichstrøm, L., Mattejat, F., & Ravens-Sieberer, U. (2008). Quality of life as reported by school children and their parents: A cross-sectional survey. Health and Quality of Life Outcomes, 6(1), 34. https://doi.org/10.1186/1477-7525-6-34
Kalfoss, M. H., Reidunsdatter, R. J., Klöckner, C. A., & Nilsen, M. (2021). Validation of the WHOQOL-Bref: Psychometric properties and normative data for the Norwegian general population. Health and Quality of Life Outcomes, 19(1), 13. https://doi.org/10.1186/s12955-020-01656-x
Kaydok, E., Solum, S., & Cinaroglu, N. S. (2020). Comparison of the caregiver burden of the mothers of children with cerebral palsy and healthy children. Medicine, 9(1), 67-72. https://doi.org/10.5455/medscience.2019.08.9136
Kenis-Coskun, O., Atabay, C. E., Sekeroglu, A., Akdeniz, E., Kasil, B., Bozkurt, G., & Karadag-Saygi, E. (2020). The relationship between caregiver burden and resilience and quality of life in a Turkish pediatric rehabilitation facility. Journal of Pediatric Nursing, 52, e108-e113. https://doi.org/10.1016/j.pedn.2019.10.014
Khayatzadeh Mahani, M., Rostami, H. R., & Nejad, S. J. (2013). Investigation of quality of life determinants among mothers of children with pervasive developmental disorders in Iran. Hong Kong Journal of Occupational Therapy, 23(1), 14-19. https://doi.org/10.1016/j.hkjot.2013.03.002
Kiani, H. S., Aftab, A., Waqar, S., Hussain, S. A., Naqvi, Q., & Awan, W. A. (2021). Caregivers’ burden among parents of children with cerebral palsy. Rehman Journal of Health Sciences, 3(1), 52-55. https://doi.org/10.52442/rjhs.v3i1.75
Kim, S. (2020). World Health Organization quality of life (WHOQOL) assessment. Encyclopedia of Quality of Life and Well-being Research, 1-2.
Kisinna, Asongo A., Ohene, Lillian A., & Attafuah, Priscilla A. A. (2025). Family caregivers' burden and coping with caring for children with cerebral palsy: A qualitative study in a low-resourced context, Ghana. Child: Care, Health and Development, 51(4), e70141. https://doi.org/10.1111/cch.70141
Lansdown, G., & Vaghri, Z. (2022). Article 1: Definition of a Child. In Z. Vaghri, J. Zermatten, G. Lansdown, & R. Ruggiero (Eds.), Monitoring State Compliance with the UN Convention on the Rights of the Child: An Analysis of Attributes (pp. 407-412). Springer International Publishing. https://doi.org/10.1007/978-3-030-84647-3_40
Legal., U. (2023). Caregiver law and legal definition. Published 2023. Accessed September 16, 2023.https://definitions.uslegal.com/c/caregiver
Liu, F., Shen, Q., Huang, M., & Zhou, H. (2023). Factors associated with caregiver burden among family caregivers of children with cerebral palsy: A systematic review. BMJ Open, 13(4), 1-12. https://doi.org/10.1136/bmjopen-2022-065215
Liu, F., Zhang, R., Cui, C., & Zhou, H. (2025). Care burden and quality of life among family caregivers of children with cerebral palsy in China: The mediating roles of social support and coping styles. BMC Public Health, 25(1), 506. https://doi.org/10.1186/s12889-025-21679-7
Liu, Z., Heffernan, C., & Tan, J. (2020). Caregiver burden: A concept analysis. International Journal of Nursing Sciences, 7(4), 438-445. https://doi.org/10.1016/j.ijnss.2020.07.012
Ljungholm, L., Klinga, C., Edin‐Liljegren, A., & Ekstedt, M. (2022). What matters in care continuity on the chronic care trajectory for patients and family carers? A conceptual model. Journal of Clinical Nursing, 31(9-10), 1327-1338. https://doi.org/10.1111/jocn.15989
Magagula, F., Temane, A., & Nolte, A. G. W. (2022). Women with mobility disabilities' experiences of maternity care during pregnancy, labour and puerperium in Eswatini. Health SA Gesondheid, 27, a1861. https://doi.org/10.4102/hsag.v27i0.1861
Majerová, V. (2007). Social factors influencing the differences between developed and less developed regions. Agricultural Economics, 53(11), 513. https://agricecon.agriculturejournals.cz/pdfs/age/2007/11/04.pdf
Majumdar, R., & Jain, S. (2020). Comparison of quality of life of caregivers of children with and without disabilities. Journal of Clinical and Diagnostic Research 14(3), 1-4. https://doi.org/10.7860/JCDR/2020/43442.13602
Marian, S., Magesa, E., & Fillipine, N. (2019). Experiences of mothers of children born with cerebral palsy in Oshana region: Namibia. Global Journal of Health Science, 12(1), 72. https://doi.org/10.5539/gjhs.v12n1p72
Marrón, E. M., Redolar-Ripol, D., Boixadós, M., Nieto, R., Guillamón, N., Hernández, E., & Gómez, B. (2013). Burden on caregivers of children with cerebral palsy: Predictors and related factors. Universitas Psychologica, 12(3), 767-777. https://doi.org/10.11144/Javeriana.UPSY12-3.bccc
Martinez de Zabarte Fernandez, J. M., Ros Arnal, I., Pena Segura, J. L., Garcia Romero, R., & Rodriguez Martinez, G. (2021). Caregiver burden in patients with moderate-severe cerebral palsy. The influence of nutritional status. [Observational Study]. Anales de Pediatria, 94(5), 311-317. https://doi.org/10.1016/j.anpedi.2020.06.020
Masefield, S. C., Prady, S. L., Sheldon, T. A., Small, N., Jarvis, S., & Pickett, K. E. (2020). The caregiver health effects of caring for young children with developmental disabilities: A meta-analysis. Maternal Child Health Journal, 24(5), 561-574. https://doi.org/10.1007/s10995-020-02896-5
McIntyre, S., Goldsmith, S., Webb, A., Ehlinger, V., Hollung, S. J., McConnell, K., Arnaud, C., Smithers-Sheedy, H., Oskoui, M., Khandaker, G., Himmelmann, K., & Group*, t. G. C. P. (2022). Global prevalence of cerebral palsy: A systematic analysis. Developmental Medicine & Child Neurology, 64(12), 1494-1506. https://doi.org/10.1111/dmcn.15346
Megari, K. (2013). Quality of life in chronic disease patients. Health Psychology Research, 1(3), e27. https://doi.org/10.4081/hpr.2013.e27
Moriwaki, M., Yuasa, H., Kakehashi, M., Suzuki, H., & Kobayashi, Y. (2022). Impact of social support for mothers as caregivers of cerebral palsy children in Japan. Journal of Pediatric Nursing, 63, e64-e71. https://doi.org/10.1016/j.pedn.2021.10.010
Mwinbam, M. M., Suglo, J. N., Agyeman, Y. N., & Kukeba, M. W. (2023). Family caregivers' experience of care with a child with cerebral palsy: The lived experiences and challenges of caregivers in a resource-limited setting in northern Ghana. BMJ Paediatrics Open, 7(1), 1-10. https://doi.org/10.1136/bmjpo-2022-001807
Naaz, F., Nayak, B. P., Panigrahi, S., & Mohakud, N. K. (2025). Psychosocial and economic burden on families of children with cerebral palsy: A correlation with locomotor severity. Cureus, 17(1), e76794. https://doi.org/10.7759/cureus.76794
Ndlovu, J. T., & Mokwena, K. E. (2023). Burden of care of family caregivers for people diagnosed with serious mental disorders in a rural health district in Kwa-Zulu-Natal, South Africa. Healthcare, 11(19), 2686. https://doi.org/10.3390/healthcare11192686
Ni, Z. H., Ding, S., Wu, J. H., Zhang, S., & Liu, C. Y. (2022). Family caregivers’ experiences of caring for children with cerebral palsy in China: A qualitative descriptive study. INQUIRY: The Journal of Health Care Organization, Provision, and Financing, 59, 1-7. https://doi.org/10.1177/00469580221121510
Nomaguchi, K., & Milkie, M. A. (2020). Parenthood and well-Being: A decade in review. Journal of Marriage and Family, 82(1), 198-223. https://doi.org/10.1111/jomf.12646
Novak, M., & Guest, C. (1989). Application of a multidimensional caregiver burden inventory1. The Gerontologist, 29(6), 798-803. https://doi.org/10.1093/geront/29.6.798
O'Brien, J. (2015). Swaziland National Disability Plan of Action (NDPA). United Nations Development Program Retrieved from https://www.rodra.co.za/images/countries/eswatini/research/Disability%20plan%20of%20action%202015.pdf
Office, E. C. S. (2019). The 2017 Population and Housing Census. Central Statistical Office. https://books.google.com.tw/books?id=OPdczwEACAAJ
Omole, J. O., Adegoke, S. A., Omole, K. O., Mbada, C. E., Adedeji, G. A., & Adeyemi, O. A. (2019). Levels, correlates, and predictors of stress and caregiver burden among caregivers of children with cerebral palsy in Nigeria. Journal of Pediatric Neurology, 17(1), 13-21. https://doi.org/10.1055/s-0037-1612639
Önder, M., & Karabulut, A. (2017). Determining the needs of mothers with at least three intellectual disabled children. . European Journal of Special Education Research 2(6). https://doi.org/10.46827/ejse.v0i0.1323
Organization, W. H. (1996). WHOQOL-Bref: Introduction. Administration, Scoring and Generic Version of the Assessment: Field Trial Version.
Ozkan, Y. (2018). Child’s quality of life and mother’s burden in spastic cerebral palsy: A topographical classification perspective. Journal of International Medical Research, 46(8), 3131-3137. https://doi.org/10.1177/0300060518772758
Pacheco Barzallo, D., Schnyder, A., Zanini, C., & Gemperli, A. (2024). Gender differences in family caregiving. Do female caregivers do more or undertake different tasks? BMC Health Services Research, 24(1), 730. https://doi.org/10.1186/s12913-024-11191-w
Palisano, R. J., Cameron, D., Rosenbaum, P. L., Walter, S. D., & Russell, D. (2006). Stability of the Gross Motor Function Classification System. Developmental Medicine & Child Neurology, 48(6), 424-428. https://doi.org/10.1017/S0012162206000934
Pandit, B., Singh, J. K., Karn, A. K., & Pandit, R. (2020). Quality of life among primary caregivers of children with cerebral palsy living in Sarlahi and Rautahat districts of Nepal. Journal of Nepal Health Research Council, 18(49), 619-625. https://doi.org/10.33314/jnhrc.v18i4.2282
Park, M. Y., & Lee, J. (2024). Psychological well-being interactively affected by long working hours and caregiving activities. Safety and Health at Work, 15(4), 458-463. https://doi.org/10.1016/j.shaw.2024.10.006
Patel, D. R., Neelakantan, M., Pandher, K., & Merrick, J. (2020). Cerebral palsy in children: A clinical overview. Translational Pediatrics, 9(Suppl 1), S125-s135. https://doi.org/10.21037/tp.2020.01.01
Peer, J. W., & Hillman, S. B. (2014). Stress and resilience for parents of children with intellectual and developmental disabilities: A review of key factors and recommendations for practitioners. Journal of Policy and Practice in Intellectual Disabilities, 11(2), 92-98. https://doi.org/10.1111/jppi.12072
Piran, P., Khademi, Z., Tayari, N., & Mansouri, N. (2017). Caregiving burden of children with chronic diseases. Electron Physician, 9(9), 5380-5387. https://doi.org/10.19082/5380
Poley, M. J., Brouwer, W. B. F., van Exel, N. J. A., & Tibboel, D. (2012). Assessing health-related quality-of-life changes in informal caregivers: An evaluation in parents of children with major congenital anomalies. Quality of life research, 21(5), 849-861. https://doi.org/10.1007/s11136-011-9991-7
Prakash, V., Patel, A. M., Hariohm, K., & Palisano, R. J. (2017). Higher levels of caregiver strain perceived by Indian mothers of children and young adults with cerebral palsy who have limited self-mobility. Physical & Occupational Therapy in Pediatrics, 37(1), 64-73. https://doi.org/10.3109/01942638.2015.1138016
Raj, J. (2022). Quality of life of caregivers of children with cerebral palsy : A systematic literature review http://urn.kb.se/resolve?urn=urn:nbn:se:hj:diva-57174
Rakap, S., Vural Batık, M., & Coleman, H. (2023). Predictors of family burden in families caring for children with special needs. Journal of Childhood, Education & Society 4(1). https://doi.org/10.37291/2717638x.202341245
Rata Mohan, D. S., Jawahir, S., Manual, A., Abdul Mutalib, N. E., Mohd Noh, S. N., Ab Rahim, I., Ab Hamid, J., & Amer Nordin, A. (2025). Gender differences in health-seeking behaviour: Insights from the National Health and Morbidity Survey 2019. BMC Health Service Research, 25(1), 900. https://doi.org/10.1186/s12913-025-13020-0
Resnik, D., B. (2020). What is ethics in research & why is it important? National Institute of Environmental Health Sciences https://www.niehs.nih.gov/research/resources/bioethics/whatis/index.cfm. accessed November 14, 2023
Revenson, T. A., Griva, K., Luszczynska, A., Morrison, V., Panagopoulou, E., Vilchinsky, N., & Hagedoorn, M. (2016). Gender and caregiving: The costs of caregiving for women. In T. A. Revenson, K. Griva, A. Luszczynska, V. Morrison, E. Panagopoulou, N. Vilchinsky, & M. Hagedoorn (Eds.), Caregiving in the Illness Context (pp. 48-63). Palgrave Macmillan UK. https://doi.org/10.1057/9781137558985_5
Riley, R. D., Snell, K. I., Ensor, J., Burke, D. L., Harrell, F. E., Jr., Moons, K. G., & Collins, G. S. (2019). Minimum sample size for developing a multivariable prediction model: PART II - binary and time-to-event outcomes. Statistics in Medicine, 38(7), 1276-1296. https://doi.org/10.1002/sim.7992
Robinson, B. C. (1983). Validation of a Caregiver Strain Index. Journal of Gerontology, 38(3), 344-348. https://doi.org/10.1093/geronj/38.3.344
Rodrigues, D. Z., Ferreira, F. Y., & Okido, A. C. C. (2018). The burden of family caregiver of children with special health needs. Revista Eletronica Enfermagem, 20, v20a48. https://doi.org/10.5216/ree.v20.53190
Roling, M., Falkson, S., Hellmers, C., & Metzing, S. (2020). Early caregiving experiences and the impact on transition into adulthood and further life: A literature review. Scandinavian Journal of Caring Sciences, 34(3), 539-551. https://doi.org/10.1111/scs.12757
Romeo, D. M., Venezia, I., Pede, E., & Brogna, C. (2023). Cerebral palsy and sex differences in children: A narrative review of the literature. Journal of Neuroscience Research, 101(5), 783-795. https://doi.org/10.1002/jnr.25020
Roth, D. L., Fredman, L., & Haley, W. E. (2015). Informal caregiving and its impact on health: A reappraisal from population-based studies. The Gerontologist, 55(2), 309-319. https://doi.org/10.1093/geront/gnu177
Sadowska, M., Sarecka-Hujar, B., & Kopyta, I. (2020). Cerebral palsy: Current opinions on definition, epidemiology, risk factors, classification and treatment options. Neuropsychiatric Disease and Treatment, 16, 1505-1518. https://doi.org/10.2147/NDT.S235165
Sakwape, K., Machailo, R., & Koen, M. P. (2023). Exploring role strain and experiences of caregivers of children living with disabilities. Nursing Open, 10(5), 2886-2894. https://doi.org/10.1002/nop2.1530
Sanvictores, T., & Mendez, M. D. (2023). Types of parenting styles and effects on children. StatPearls Publishing, Treasure Island (FL). http://europepmc.org/abstract/MED/33760502
Saqib Lodhi, F., Ahmed Khan, A., Raza, O., Uz Zaman, T., Farooq, U., & Holakouie-Naieni, K. (2019). Level of satisfaction and its predictors among joint and nuclear family systems in District Abbottabad, Pakistan. Medical Journal of Islamic Republic of Iran, 33(59), 1-6. https://doi.org/10.34171/mjiri.33.59
Seroke, S., & Mkhize, S. W. (2023). Psychosocial experiences of mothers caring for children with cerebral palsy in the eThekwini district. Health SA Gesondheid, 28, a2072. https://doi.org/10.4102/hsag.v28i0.2072
Setia, M. S. (2016). Methodology series module 3: Cross-sectional studies. Indian Journal of Dermatology, 61(3), 261-264. https://doi.org/10.4103/0019-5154.182410
Simões, C. C., Silva, e. L., dos Santos, M. R., Misko, M. D., & Bousso, R. S. (2013). The parents’ experience in taking care of their children with cerebral palsy. Revista Eletronica de Enfermagem, 15(1), 138-145. https://doi.org/10.5216/ree.v15i1.13464.
Singh, J. A., Siddiqi, M., Parameshwar, P., & Chandra-Mouli, V. (2019). World Health Organization guidance on ethical considerations in planning and reviewing research studies on sexual and reproductive health in adolescents. Journal of Adolescent Health, 64(4), 427-429. https://doi.org/10.1016/j.jadohealth.2019.01.008
Sonune, S. P., Gaur, A. K., & Shenoy, A. (2021). Prevalence of depression and quality of life in primary caregiver of children with cerebral palsy. Journal of Family Medicine and Primary Care, 10(11), 4205-4211. https://doi.org/10.4103/jfmpc.jfmpc_70_21
Spore, E. (2012). The quality of life of primary caregivers of children with chronic conditions. University of Illinois at Chicago].
Statistics, B. o. L. (2024). The economics daily, time spent caring for household children in 2023. U.S. Burea of Labour Statistics https://www.bls.gov/opub/ted/2024/time-spent-caring-for-household-children-in-2023.htm (visited October 17, 2025).
Stein, R. E. K. (2024). Defining child health in the 21st century. European Society of Pediatric Research, 1-7. https://doi.org/10.1038/s41390-024-03423-w
Sullivan, M. T. (2003). Caregiver Strain Index (CSI). Home Healthcare Now, 21(3), 197-198. https://journals.lww.com/homehealthcarenurseonline/fulltext/2003/03000/caregiver_strain_index__csi_.24.aspx
Sun, F. (2011). Community service use by older adults: The roles of sociocultural factors in rural-urban differences. Journal of Social Service Research, 37(2), 124-135. https://doi.org/10.1080/01488376.2011.547446
Tegegne, K. T., Chalachew, A. A., Abebe, M. T., Wudu, T. K., Melese, A. D., Tegegne, E. T., Tessema, M. K., & Kelkay, J. M. (2025). Psychosocial impact on parents raising children with cerebral palsy at Gondar comprehensive specialized hospital, Northwest Ethiopia. BMC Neurology, 25(1), 369. https://doi.org/10.1186/s12883-025-04397-w
Toledano-Toledano, F., Moral de la Rubia, J., Nabors, L. A., Domínguez-Guedea, M. T., Salinas Escudero, G., Rocha Pérez, E., Luna, D., & Leyva López, A. (2020). Predictors of quality of life among parents of children with chronic diseases: A cross-sectional study. Healthcare 8(4). https://doi.org/10.3390/healthcare8040456
Trabacca, A., Vespino, T., Di Liddo, A., & Russo, L. (2016). Multidisciplinary rehabilitation for patients with cerebral palsy: Improving long-term care. Journal of Multidisciplinary Healthcare, 9, 455-462. https://doi.org/10.2147/jmdh.S88782
Tseng, M.-H., Chen, K.-L., Shieh, J.-Y., Lu, L., Huang, C.-Y., & Simeonsson, R. J. (2016). Child characteristics, caregiver characteristics, and environmental factors affecting the quality of life of caregivers of children with cerebral palsy. Disability and Rehabilitation, 38(24), 2374-2382. https://doi.org/10.3109/09638288.2015.1129451
Tuncay, S., & Sarman, A. (2023). The relationship of spiritual orientation and caregiver burden of caregiver mothers with a child with cerebral palsy in Turkey. Child: Care, Health and Development, 50(1), e13141. https://doi.org/10.1111/cch.13141
Vadivelan, K., Sekar, P., Sruthi, S. S., & Gopichandran, V. (2020). Burden of caregivers of children with cerebral palsy: An intersectional analysis of gender, poverty, stigma, and public policy. BMC Public Health, 20(1), 645. https://doi.org/10.1186/s12889-020-08808-0
Valla, L., Helseth, S., Småstuen, M. C., Misvær, N., & Andenæs, R. (2022). Factors associated with maternal overall quality of life six months postpartum: A cross sectional study from the Norwegian mother, father and child cohort study. BMC Pregnancy and Childbirth, 22(1), 4. https://doi.org/10.1186/s12884-021-04303-5
Vameghi, R., Hoseini, S. A., Heydarian, S., Azadeh, H., & Gharib, M. (2023). Walking ability, participation, and quality of Life in children with spastic diplegic cerebral palsy: A path analysis study. Iranian Journal of Child Neurology, 17(2), 75-91. https://doi.org/10.22037/ijcn.v17i1.34924
Varni, J. W., Sherman, S. A., Burwinkle, T. M., Dickinson, P. E., & Dixon, P. (2004). The PedsQL Family Impact Module: Preliminary reliability and validity. Health Quality of Life Outcomes, 2, 55. https://doi.org/10.1186/1477-7525-2-55
Vitrikas, K., Dalton, H., & Breish, D. (2020). Cerebral palsy: An overview. American Family Physician, 101(4), 213-220. https://www.aafp.org/pubs/afp/issues/2020/0215/p213.pdf
Wang, X., & Cheng, Z. (2020). Cross-sectional studies: Strengths, weaknesses, and recommendations. Chest, 158(1, Supplement), S65-S71. https://doi.org/10.1016/j.chest.2020.03.012
Ware, J. E., Jr., & Sherbourne, C. D. (1992). The MOS 36-item short-form health survey (SF-36). I. Conceptual framework and item selection. Medical Care, 30(6), 473-483. http://www.jstor.org/stable/3765916?origin=JSTOR-pdf
Wijesinghe, C. J., Cunningham, N., Fonseka, P., Hewage, C. G., & Ostbye, T. (2015). Factors associated with caregiver burden among caregivers of children with cerebral palsy in Sri Lanka. Asia-Pacific Journal of Public Health, 27(1), 85-95. https://doi.org/10.1177/1010539514548756
Wijesinghe, C. J., Fonseka, P., & Hewage, C. G. (2013). The development and validation of an instrument to assess caregiver burden in cerebral palsy: Caregiver difficulties scale. Ceylon Medical Journal, 58(4), 162-167. https://doi.org/10.4038/cmj.v58i4.5617
Wilson, S. M., & Ngige, L. W. (2006). Families in Sub-Saharan Africa. In Families in global and multicultural perspective (pp. 247-273). Sage Publications, Inc.
Yigman, F., Aykin Yigman, Z., & Unlu Akyuz, E. (2020). Investigation of the relationship between disease severity, caregiver burden and emotional expression in caregivers of children with cerebral palsy. Irish Journal of Medical Science, 189(4), 1413-1419. https://doi.org/10.1007/s11845-020-02214-6
Yildirim, M., Duken, M. E., Dag, Y. S., & Yayan, E. H. (2022). Examining care burden, social support, and loneliness in parents of children with cerebral palsy. International Journal of Caring Sciences, 15(3), 1655-1664. https://search.ebscohost.com/login.aspx?direct=true&db=rzh&AN=162044661&site=ehost-live
Yıldırım Sarı, H., & Basbakkal, Z. (2008). Developing “A Family Burden Assessment Scale” for the families of children with intellectual disability. Ataturk University Journal of School of Nursing, 11(3), 86-95. https://dergipark.org.tr/en/download/article-file/29426
Yilmaz, G., & Küçük Alemdar, D. (2021). Evaluation of care burden among mothers of children with a disability: Correlation between physical activity, quality of life, and sleep quality: A cross‐sectional study. Perspectives in Psychiatric Care, 57(1), 1-9. https://doi.org/10.1111/ppc.12534
Yousaf, A., Iqbal, H., Zubair, R., Kashif, M., Hassan, D., & Ahmed, R. (2020). Factors associated with caregiver burden among caregivers of cerebral palsy children. The Professional Medical Journal, 27(08), 1555-1559. https://doi.org/10.29309/TPMJ/2020.27.08.3781
Yu, Y., Yang, L., Liu, Y., Fang, J., Wang, H., & Luo, D. (2025). Caregiver burden and associated factors among primary caregivers of children with congenital disorders: A comparative cross-sectional study in Hunan Province, China. BMC Nursing, 24(1), 491. https://doi.org/10.1186/s12912-025-03114-9
Zarit, S. H., Reever, K. E., & Bach-Peterson, J. (1980). Relatives of the impaired elderly: Correlates of feelings of burden. The Gerontologist, 20(6), 649-655. https://doi.org/10.1093/geront/20.6.649
Zhong, X., & Wijesinghe, C. J. (2025). The level and factors associated with caregiver experience among parents of children with cerebral palsy: A cross-sectional study in Southwest China. Frontiers in Public Health, 13, 1482011. https://doi.org/10.3389/fpubh.2025.1482011