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研究生: 劉美吟
Liu, Mei-Yin
論文名稱: 比較失智症多專業與跨專業照護諮詢模式對照顧者照顧能力及心理困擾之成效
Comparing the Effects of the Multi- and Trans-disciplinary Care Consultation Models on Caregiver Competence and Psychological distress
指導教授: 王靜枝
Wang, Jing-Jy
學位類別: 博士
Doctor
系所名稱: 醫學院 - 護理學系
Department of Nursing
論文出版年: 2024
畢業學年度: 112
語文別: 英文
論文頁數: 147
中文關鍵詞: 失智症家庭為中心跨專業照顧諮詢家庭照顧者照顧能力
外文關鍵詞: Dementia, Family-centered, Transdisciplinary, care consultation, family caregiver, Care competence
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  • 背景
    失智症者的認知與非認知功能的障礙會干擾他們的日常生活和活動且對失智照顧者具相當挑戰性。而絕大多數失智症者居住在家中由家庭成員承擔照顧責任。隨著病程的進展,失智症者的生活能力逐漸下降及出現精神行為症狀,導致家庭照顧需求及困難度急遽增加,故需要發展以家庭為中心的整合式照護介入模式,將個案與整個家庭視為一個整體,由不同的健康照護專業領域共同擬定照顧計畫與提供照顧技巧與相關資訊,以改善照顧者照護能力及提升照護成效,使得失智症者及其家庭能正常運作。因此發展了失智症跨專業照護諮詢模式,期望解決多專業失智症照護諮詢在資源分散、需要各專業協調以及服務重疊或間隙的挑戰,而失智症跨專業照護諮詢為單一窗口,旨在提高效率,改善團隊協調和溝通,提供更加流暢的失智症照護方法。鑑於此,有必要檢驗這兩種模型的獨特效果。為了幫助確定最具成本效益的照護方法以優化資源分配,並促進失智症照護服務的持續改進。
    目的
    本研究探討跨專業照護諮詢與多專業失智症照護諮詢相比較對於家庭照顧者照顧能力與心理困擾之成效探討。
    方法
    本研究為實驗性設計,為二組的對照試驗,於南部某醫學中心失智症照顧諮詢門診收案,介入前進行前測,介入後各組都分別於第3個月、第6個月與第12個月進行共計12個月的追蹤測量。主要測量工具包含照顧能力量表、照護需求量表中的照顧者心理困擾次量表,資料之組內與組間變化採用意向分析並以線性回歸運用廣義估計方程式(GEE)進行統計分析。
    結果
    共68名參與者被分配到多專業失智症照護諮詢組(33人)或失智症跨專業照護諮詢組(35人);其中63人(佔93%)在3個月後進行追蹤,60人(佔88%)在6個月後進行追蹤,56人(佔82%)在12個月後完成追蹤。在照護能力部份,調整人口學變項後,時間交互作用在組內達顯著差異(Wald x^2= 22.20, p < .001),在追蹤測量(T3-T0)中,多專業失智症照護諮詢組與基線相比增加了8.21分(p = .001),失智症跨專業照護諮詢組增加了6.97分(p = .001),顯示照護能力分數在兩組中隨時間顯著增加。但是失智症跨專業照護諮詢組對於提升參與者照顧能力的效果並不比多專業失智症照護諮詢更有效(T3-T0 , p = .601)。在心理壓力部分,結果顯示組內時間交互作用並不顯著(Wald x^2 = .518, p > .05,在追蹤測量(T3-T0)中,與基線相比的平均心理壓力分數,多專業失智症照護諮詢組雖減少了0.51分(p = .611),失智症跨專業照護諮詢組雖減少了0.61分(p = .496),兩組都未達到統計學上的顯著性。另外就心理壓力改善而言,T3-T0 (0.15分, p = .895),多專業失智症照護諮詢組和失智症跨專業照護諮詢組之間沒有顯著的差異。研究結束時,對二組進行了失智症照護諮詢助益程度調查,多專業失智症照護諮詢組,平均得分為32.08 ± 9.13,失智症跨專業照護諮詢組平均得分數為37.18 ± 5.66顯示失智症跨專業照護諮詢組的反饋顯著優於專業失智症照護諮詢組(p = .016)。
    結論
    研究顯示多專業失智症照護諮詢組與失智症跨專業照護諮詢組對於提升照顧者照顧能力同樣有效,然二種模式對照顧者心理困擾未顯出效果。

    Background
    The cognitive and functional impairments in people with dementia interfere with their daily life and activities, presenting significant challenges to dementia caregivers. Most people with dementia live at home where family members bear the caregiving responsibilities. As the disease progresses, the decline in daily activity skills and the emergence of neuropsychiatric symptoms lead to a rapid increase in family care needs and difficulties. Therefore, there was a need to develop an integrated, family-centered care intervention model. This model views the people with dementia and their family as a whole, with care plans and caregiving skills and information provided by various health care professionals to improve caregiver competence and care effects, thereby enabling the functioning of people with dementia and their families. Consequently, a transdisciplinary dementia care consultation (TDCC) model was developed, aiming to address challenges faced in multidisciplinary dementia care consultation (MDCC), such as resource dispersion, the need for individual professional coordination, and the risk of service overlap or gaps. This single-window approach seeks to enhance efficiency, improve team coordination and communication, and offer a more streamlined method for dementia care. Considering these differences, it is necessary to examine the distinct effects of these two models to help determine the most cost-effective care approaches, optimize resource allocation, and promote the continuous improvement of dementia care services.
    Objective
    This study aims to explore the distinct effects of TDCC and MDCC on the care competence and psychological distress of family caregivers.
    Methods
    This experimental study was a two-group controlled trial conducted at a dementia care consultation clinic in a medical center in southern Taiwan. Baseline measurements were taken before the intervention, and follow-up measurements were conducted at the 3rd, 6th, and 12th months, totaling one-year period. Primary measurement instruments included care competence scale and the psychological distress subscale of the caregiving needs scale. Within-group and between-group differences were analyzed using intention-to-treat analysis and linear regression through generalized estimating equations (GEE) method.
    Results
    A total of 68 participants were assigned to the MDCC group (n=33) or the TDCC group (n=35), and later, 63 participants (93%) were followed up after 3 months, 60 (88%) after 6 months, and 56 (82%) completed the 12-month follow-up. In regarding to care competence, after adjusting for demographic variables, a significant within-group time interaction was observed (Wald x^2= 22.20, p < .001). In the follow-up measurement (T3-T0), the MDCC group increased by 8.21 points (p = .001) compared to baseline, and the TDCC group increased by 6.97 points (p = .001), showing significant increases in care competence scores in both groups. However, the TDCC group was not more effective than the MDCC group in enhancing participants' care competence scores (T3-T0, p = .601). In terms of psychological stress, within-group time interaction was not significant (Wald x^2 = .518, p > .05). Compared to baseline, the average psychological stress score decreased by 0.51 points (p = .611) in the MDCC group and by 0.61 points (p = .496) in the TDCC group at follow-up (T3-T0), with neither group reaching statistical significance. Also, there was no significant difference between the groups in terms of improvement in psychological distress (0.15 points, p = .895). At the end of the study, a survey on the helpfulness of dementia care consultations was conducted for both groups, with the MDCC group scoring an average of 32.08 ± 9.13, and the TDCC group scoring 37.18 ± 5.66, indicating that feedback from the TDCC group was significantly better than the MDCC group (p = .016).
    Conclusion
    The study demonstrated that both the MDCC and TDCC groups are equally effective in enhancing the care competence of caregivers. Therefore, neither of these models showed an effect on reducing the psychological distress of caregivers.

    中文摘要 I ABSTRACT III 致 謝(ACKNOWLEDGE) V TABLE OF CONTENTS VI CHAPTER ONE 1 INTRODUCTION 1 1.1 Background and Significance 1 1.2 Purpose of the Study 5 1.3 Research Questions 5 CHAPTER TWO 7 LITERATURE REVIEW 7 2.1 Dementia 7 2.2 Care Problems of PwD 9 2.2.1 Memory decline 10 2.2.2 Difficulty communicating 10 2.2.3 Problems with daily activities 11 2.2.4 Behavioral and psychological symptoms of dementia 11 2.3 psychological distress for family caregivers 12 2.4 Support of PwD and family caregivers 14 2.4.1 Improving caregiver competence 15 2.4.2 Family-Centered Care (FCC) approach 16 2.4.2.1 Dignity and Respect 17 2.4.2.2 Information Sharing 18 2.4.2.3 Participation 18 2.4.2.4 Collaboration 18 2.4.2.4.1 Multidisciplinary, and transdisciplinary care 19 2.4.3 Dementia post-diagnostic multicomponent support 21 2.5 Dementia care consultation for family caregivers 23 2.6 Summary of literature review 26 2.7 Conceptual Framework 27 CHAPTER THREE 29 METHODOLOGY 29 3.1 Introduction 29 3.2 Research Design 29 3.3 Experimental design with repeated measurements 29 3.4 Setting 30 3.5 Participants 30 3.6 Sample Size 31 3.7 Intervention 31 3.7.1 Multidisciplinary Dementia Care Consultation (MDCC) for PwD 31 3.7.2 Transdisciplinary Care Consultation (TDCC) Model for PwD 32 3.7.3 Intervention Arms 34 3.7.4 Treatment fidelity 35 3.8 Data collection 35 3.9 Study Instruments 38 3.10 Outcome measurements 38 3.10.1 Demographics and health-related characteristics 38 3.10.2 Assessment Tool for Care Needs of PwD 39 3.10.3 The Chinese version of Caregiver Competence scale 40 3.10.4 Dementia care consultation service feedback Questionnaire (DCCSFQ) 40 3.11 Data Analysis 41 3.12 Ethical Consideration 42 CHAPTER FOUR 44 RESULTS 44 4.1 Attrition Rates 44 4.2 Demographic characteristics of the family caregivers and PwD 46 4.2.1 Demographic characteristics and care situation of family caregivers 46 4.2.2 Demographic characteristics of PwD 50 4.2.3 Baseline for caregiving needs 53 4.2.4 Baseline scores for care competence and psychological distress 54 4.2.5 Baseline for Activities of Daily Living (ADLs) and Behavioral and psychological symptoms of dementia (BPSD) 55 4.3 Care competence and psychological distress of family caregivers 56 4.3.1 Mean score of Care Competence at each time point 56 4.3.2 Changes of psychological distress at each time point 57 4.3.2.1 Mean score of psychological distress at each time point 57 4.5 Effects of intervention on care competence 58 4.5.1 The time effect of intervention on care competence within groups 58 4.5.2 The group effect of intervention on care competence at each time point 60 4.5.3 Pairwise comparison between care competence and gender, age, educational level, BPSD scores, ADLs scores, and social resources utilization 64 4.6 Effects of intervention on psychological distress 66 4.6.1 The time effect of intervention on psychological distress within groups 66 4.6.2 The group effect of intervention on psychological distress at each time point 67 4.6.3 Pairwise comparison between psychological distress and gender, age, educational level, BPSD scores, ADLs scores, and social resources utilization 72 4.7 The comparison of feedback score between MDCC group and TDCC group 74 4.7.1 The mean scores of DCCSFQ between MDCC and TDCC groups 74 4.7.2 The percentage of feedback stratified between MDCC group and TDCC group 76 CHAPTER FIVE 80 DISCUSSION 80 5.1 Participants Discussion 80 5.1.1 Attrition Rates 80 5.1.2 Demographics Characteristics 81 5.1.2.1 Demographics Characteristics and care situation of family caregivers 81 5.1.2.2 Demographics Characteristics and care situation of PwD 82 5.1.3 Baseline for care competence and psychological distress 83 5.1.4 Baseline for ADLs and BPSD 83 5.1.5 The effects of the MDCC and TDCC interventions on care competence 84 5.1.5.1 The time effects of the MDCC and TDCC interventions on care competence within group 84 5.1.5.2 The group effects of the MDCC and TDCC interventions on care competence at each time point 87 5.1.5.3 The contextual factors influencing care competence of family caregivers 89 5.1.6 The effects of the MDCC and TDCC interventions on psychological distress 90 5.1.6.1 The time effects of the MDCC and TDCC interventions on psychological distress within group 90 5.1.6.2 The group effects of the MDCC and TDCC interventions on psychological distress at each time point 92 5.1.6.3 The contextual factors influencing psychological distress of family caregivers 94 5.1.7 The comparison of feedback score between MDCC group and TDCC group 95 CHAPTER SIX 97 CONCLUSIONS AND RECOMMENDATIONS 97 6.1 An overview of study 97 6.2 Conclusion 97 6.3 Recommendations 98 6.4 Limitations 100 APPENDICES 102 REFERENCE 111

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